URGENT TVR owner needs our support
Discussion
Received this via our RO from Paul Wilson (Greater Manchester, Merseyside and Cheshire TVRCC RO) and thought it needed to be posted here to support a fellow TVR owner in the traditional TVR and PH manner.
I wouldn't normally circulate this kind of thing through our group but I do think, on this occasion, it is valid as it affects one of our number. On behalf of Dave Wilkins (‘Chimbanana’ – yellow Chim 500), and others similarly affected, please kindly consider adding your voice to the following petition to the PM on the No 10 website before 11th January 2010 when it closes: -.
http://petitions.number10.gov.uk/CML-NICE/?showall...
ETA The petition is now closed. with 7,726 signatories I hope it makes a difference and thanks to everyone who signed.
As some of you are aware Dave suffers from chronic myeloid leukaemia (CML). Dave was originally diagnosed with CML in July 2005 and after initial treatment was put onto Imatinib (Glivec) a ‘first generation’ CML specific drug which served him relatively well until August last year when he became resistant to it. As a result of this Dave was then put onto a very new (and expensive) ‘second generation’ CML specific drug called Dasatinib.
Due to potential changes in the funding of available drugs by the National Institute for Clinical Excellence (NICE) it is likely that they will in April withdraw the funding for two 'second generation' drugs, including Dasatinib that are very effective (in approx 50 % of cases) in the treatment of CML. Dave therefore, along with approximately 300 other patients faces the prospect of the withdrawal of this treatment and consequently a very poor prognosis for life in the future.
Dasatinib and Nylotinib (which cost approximately £30,000 pa per patient) are only prescribed for CML sufferers who have developed resistance to or who are intolerant of Imatinib following individual approval by the patient’s Primary Care Trust. Glivec costs approximately £15,000 pa per patient and the 'additional' cost to the NHS (not taking into account the very expensive and prolonged alternative treatments that may be possible for some e.g. bone marrow transplant) is therefore less than £5m and almost certainly cheaper than the alternatives including long term palliative care!
Please see the attached article on this matter that appeared in the Daily Mail on December 14 2009 for additional information.
Completing the petition online only takes a few minutes but even though the ‘Sign’ box has to be ‘checked’ an automated acknowledgement that is sent to your email address also has to be responded to in order for individual 'signatures' to be recorded.
Thanking you in anticipation of your much-valued support.
I wouldn't normally circulate this kind of thing through our group but I do think, on this occasion, it is valid as it affects one of our number. On behalf of Dave Wilkins (‘Chimbanana’ – yellow Chim 500), and others similarly affected, please kindly consider adding your voice to the following petition to the PM on the No 10 website before 11th January 2010 when it closes: -.
http://petitions.number10.gov.uk/CML-NICE/?showall...
ETA The petition is now closed. with 7,726 signatories I hope it makes a difference and thanks to everyone who signed.
As some of you are aware Dave suffers from chronic myeloid leukaemia (CML). Dave was originally diagnosed with CML in July 2005 and after initial treatment was put onto Imatinib (Glivec) a ‘first generation’ CML specific drug which served him relatively well until August last year when he became resistant to it. As a result of this Dave was then put onto a very new (and expensive) ‘second generation’ CML specific drug called Dasatinib.
Due to potential changes in the funding of available drugs by the National Institute for Clinical Excellence (NICE) it is likely that they will in April withdraw the funding for two 'second generation' drugs, including Dasatinib that are very effective (in approx 50 % of cases) in the treatment of CML. Dave therefore, along with approximately 300 other patients faces the prospect of the withdrawal of this treatment and consequently a very poor prognosis for life in the future.
Dasatinib and Nylotinib (which cost approximately £30,000 pa per patient) are only prescribed for CML sufferers who have developed resistance to or who are intolerant of Imatinib following individual approval by the patient’s Primary Care Trust. Glivec costs approximately £15,000 pa per patient and the 'additional' cost to the NHS (not taking into account the very expensive and prolonged alternative treatments that may be possible for some e.g. bone marrow transplant) is therefore less than £5m and almost certainly cheaper than the alternatives including long term palliative care!
Please see the attached article on this matter that appeared in the Daily Mail on December 14 2009 for additional information.
Completing the petition online only takes a few minutes but even though the ‘Sign’ box has to be ‘checked’ an automated acknowledgement that is sent to your email address also has to be responded to in order for individual 'signatures' to be recorded.
Thanking you in anticipation of your much-valued support.
Edited by V8 GRF on Tuesday 12th January 15:17
hope it helps.
Signed Dave all the best hope we get the right out come on this we payout to all the lazy buggers who never work & take in strays from all over the world & give them houses & money yet we cannot provide the healthcare necessary to hard working tax payers we are a laughing stock throughout Europe
Ian
Ian
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