NHS Summary care records

NHS Summary care records

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Discussion

condor

Original Poster:

8,837 posts

255 months

Monday 22nd March 2010
quotequote all
Got a letter today about how the NHS Summary Care Record is being introduced in Beds later on this year.
Anyone else got one? or are we early guinea pigs for this scheme?

The first line is positive - saying how the NHS is enhancing the way your health information is stored and managed...and how it will help to deliver, better, safer care.
The information will initially be about current medications/allergies/bad reaction to medicine...

...then we get to this bit 'Over time it will build to include information about other health issues considered important to your wellbeing.'

I'm not too keen on that last sentence...as in who does the considering?
Any comments NHS peeps? smile

Lucie W

3,473 posts

189 months

Monday 22nd March 2010
quotequote all
I think there are a few pilot areas, I know Devon is one of them too, I got the letter. As someone who will be accessing patient records from later this year...I think it is a good idea. I don't really have any concerns about my information being shared; if it was used inappropriately then the public outrage would be massive so I think the NHS will be verrry careful with it.

The_Doc

5,112 posts

227 months

Monday 22nd March 2010
quotequote all
"In April 2007, the Public Accounts Committee of the House of Commons issued a damning 175-page report on the programme. The Committee chairman, Edward Leigh, claimed "This is the biggest IT project in the world and it is turning into the biggest disaster." The report concluded that, despite a probable expenditure of 20 billion pounds "at the present rate of progress it is unlikely that significant clinical benefits will be delivered by the end of the contract period.""

Initial budget: £2.3 billion
Projected true cost: £20 billion

"A report by the Public Accounts Committee in 2009 called the risks to the successful deployment of the system "as serious as ever", adding that key deliverables at the heart of the project were "way off the pace", noting that "even the revised completion date of 2014-2015 for these systems now looks doubtful in the light of the termination last year of Fujitsu's contract covering the South", and concluding "essential systems are late, or, when deployed, do not meet expectations of clinical staff"


Quotes from wikipedia

Most people in the NHS think it's a massive, costly joke.

A bit like building a huge white tent in the east end of London and making every single taxpayer pay for it even if they have no intention of going, and then when they do go, charge them again.

NHS IT, the two words go together like 'baby' and 'thermonuclear device'

Edited by The_Doc on Monday 22 March 15:11

Tanguero

4,535 posts

208 months

Monday 22nd March 2010
quotequote all
Letter received am, opted out pm. To believe that the NHS will be very carefull with any information is too much of a stretch of credulity for me.

Edited by Tanguero on Monday 22 March 16:59

condor

Original Poster:

8,837 posts

255 months

Monday 22nd March 2010
quotequote all
I have a strong feeling that I'll opt out as well. You can always opt in at a later date if it seems to be running smoothly.

Tanguero

4,535 posts

208 months

Monday 22nd March 2010
quotequote all
I can't think of a single advantage to me, to opt in. It may be paranoid but the less of my personal information that is available to be left on a laptop on a train, the happier I feel.

littlegreenfairy

10,134 posts

228 months

Tuesday 23rd March 2010
quotequote all
Sheffield has been sent these too.

Considering the wkers keep sending me chlamydia testing kits (loads of the feckers) and me keep telling them to eff off, I'm not sure I want anymore information being shared for my "wellbeing"

(and all because I used a clinic that does a lot of STI testing to get antibiotics for a chest infection. Note to medics, my lungs are not my lady bits)

Lucie W

3,473 posts

189 months

Tuesday 23rd March 2010
quotequote all
Tanguero said:
I can't think of a single advantage to me, to opt in. It may be paranoid but the less of my personal information that is available to be left on a laptop on a train, the happier I feel.
If I've understood the concept properly, there is a benefit to me opting in. If I was involved in an accident or emergency and taken to a hospital that I'd never been to before, if I was unconscious then the records would show them not to give me a certain drug that I am allergic to and potentially stop a big problem. However having read more into the scheme, I kind of take back what I said in my first post, it doesn't sound like a great idea for the cost, but I don't see why the majority would be opposed to it apart from the cost side.

Gareth350

1,556 posts

186 months

Tuesday 23rd March 2010
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Had my letter a couple of weeks ago, in Hertfordshire.

Jay12329

115 posts

198 months

Tuesday 23rd March 2010
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Had the letter in Berkshire, having working in the NHS and in NHS IT there are far worse things to be afraid of. Like blood, I hate blood. And my job is blood hurl

J

Mrs Muttleysnoop

1,414 posts

191 months

Tuesday 23rd March 2010
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Got my letter couple of weeks ago in East Anglia.

condor

Original Poster:

8,837 posts

255 months

Tuesday 23rd March 2010
quotequote all
These letters seem to be quite well spread then scratchchin

Engineer1

10,486 posts

216 months

Tuesday 23rd March 2010
quotequote all
The idea sounds sensible have all medical records held centrally so they can be accessed and checked from any hospital or doctors. Of course if they are running a pilot of it then it becomes pointless as how do they know you are from the pilot area or who you are if you are rushed to hospital unconscious, st I've just made a case for compulsory id cards or id tattoos.

toxgobbler

2,903 posts

198 months

Tuesday 23rd March 2010
quotequote all
As you have to opt out in writing, please see below link for form you need to fill in:

http://www.connectingforhealth.nhs.uk/systemsandse...

More useful information on:

http://www.no2id.net/downloads/SCR_optout_sheet.pd...

The leaflet 'Changes to your health records' states that "anyone who has access to your records... must be directly involved in caring for you". THIS IS UNTRUE: the Department's own documents show that
government officials and many others will have access "in the public interest", "by statute" (remember Clause 152) or by court order.

grumbledoak

31,839 posts

240 months

Tuesday 23rd March 2010
quotequote all
condor said:
These letters seem to be quite well spread then scratchchin
Southwark, too. Quite a 'pilot'.

condor

Original Poster:

8,837 posts

255 months

Thursday 25th March 2010
quotequote all
I dropped into my Gp's practice this morning and asked one of the receptionists for an opt-out form...filled it in, job done smile

Twit

2,908 posts

271 months

Thursday 25th March 2010
quotequote all
Its not a pilot, its country wide now.

You can't fully opt out, there will be information about everybody on the system, like it or not, but if you opt out there will be less. The only real way to keep clear of the SCR is to use the data protection act and instruct your GP not to keep your records electronically - you can do this. By doing that you remove most of the opportunity for information to be uploaded to the SCR.

Its a while since I have been anywhere near any of this, but I do know a bit about it, and I am opting out.