Looking for money for new lungs
Discussion
A few weeks ago I met a guy a few years older than me who had a lung transplant 20 years ago.
As he has Cystic Fibrosis - just like my youngest daughter - his lungs are now almost worn out and he needs a new pair to live.
There's no funding from either private money or his health care and he will die within 2 years if the transplant is not possible.
It goes without saying I can't let this happen.
As this is a large community I ask for any help and info - or leads - to guide me to paths where I can help this guy to go on living and grow 60-something.
Cheers, A.
As he has Cystic Fibrosis - just like my youngest daughter - his lungs are now almost worn out and he needs a new pair to live.
There's no funding from either private money or his health care and he will die within 2 years if the transplant is not possible.
It goes without saying I can't let this happen.
As this is a large community I ask for any help and info - or leads - to guide me to paths where I can help this guy to go on living and grow 60-something.
Cheers, A.
yammyfan said:
If the funds were available is it possible to buy a new set of lungs? wouldn't the NHS just put you on a list to wait for a pair to become available?
...On a similar line I was thinking it shouldn't be possible to bump yourself up the transplant list by having the most cash.By looking after yourself to ensure you are as fit as possible for the operation when it's required absolutely should count. But cash for body parts...not sure I like that idea.
I do apologize for my bad English.
I will explain. In Holland the operation is a no go because there's no emergency: when over 45 years old you're not on that list, simply because there are cases regarded as more urgent. Young kids a.s.
The lungs are available but the operation can only be carried out in a private clinic, he choose a German hospital. He is now looking to fund his operation: 250K euros.
I will explain. In Holland the operation is a no go because there's no emergency: when over 45 years old you're not on that list, simply because there are cases regarded as more urgent. Young kids a.s.
The lungs are available but the operation can only be carried out in a private clinic, he choose a German hospital. He is now looking to fund his operation: 250K euros.
My grandfather was in the same position, except he was older when diagnosed. I started doing enquiries into a transplant when he was 70+ but I was told that a transplant is simply not an option on anyone over the age of 65 due to the risks. He did however tell me that the doctor told him he only needed 1 lung to significantly help. So there may be something that can be done for your friend.
I would ring various lung charities, or look into getting the operation done in a foreign country where it is possible to pay for something like this.
Sorry I cannot help further. All the best.
I would ring various lung charities, or look into getting the operation done in a foreign country where it is possible to pay for something like this.
Sorry I cannot help further. All the best.
dinkel said:
The lungs are available but the operation can only be carried out in a private clinic, he choose a German hospital. He is now looking to fund his operation: 250K euros.
can you clarify how that works please dink? i interpret that he is on a transplant list and has a pair waiting for him, but the health service won't perform the op. i think i misunderstand. dinkel,
Not sure that you'll find someone to pay for the operation but if you feel you need to help, then you go about getting yourself sponsored to do something...
You could register on the www.justgiving.com website so that people around the Uk and Europe could donate towards it.
Here is how it works.. http://www.justgiving.com/how-justgiving-works/
Not sure if this is what you were after but the only way I can see you getting money to help this guy.
I applaude your willingness to help others and hope you succeed in getting somewhere near the 250k Euros mate.
Kev
Not sure that you'll find someone to pay for the operation but if you feel you need to help, then you go about getting yourself sponsored to do something...
You could register on the www.justgiving.com website so that people around the Uk and Europe could donate towards it.
Here is how it works.. http://www.justgiving.com/how-justgiving-works/
Not sure if this is what you were after but the only way I can see you getting money to help this guy.
I applaude your willingness to help others and hope you succeed in getting somewhere near the 250k Euros mate.
Kev
250k euros? Damn.
I remember reading that up until the mid 90s organ trading was legal in India - it worked quite well and India became one of the largest kidney transplant centres of the world drawing in patients from all over the globe.
However, since legislation came in to ban this trade it's all gone underground.
No I'm not suggesting this chap travel halfway round the world for a transplant but nonetheless I think the west should look seriously at legalising organ trading over here. The current opt in donor list is just not sufficient for the thousands who require organs in this country.
I remember reading that up until the mid 90s organ trading was legal in India - it worked quite well and India became one of the largest kidney transplant centres of the world drawing in patients from all over the globe.
However, since legislation came in to ban this trade it's all gone underground.
No I'm not suggesting this chap travel halfway round the world for a transplant but nonetheless I think the west should look seriously at legalising organ trading over here. The current opt in donor list is just not sufficient for the thousands who require organs in this country.
Six Fiend said:
There are people having second ops in the UK but it's not hugely common.
And that's exactly the reason why health care won't fund for his operation.39 - for those who don't know: average life expectation is 40 - and I'm 42 with a 6 year old daughter with CF. :cough: It changes ones life.
How are you? In terms of pseudomonas, eating, weight, lung capacity etc.
I'm not bad really in CF terms. In everyday person terms it's a bit crap to say the least 
One of a whole bunch over here in their 30s to 60s. Have done some epic IV courses to fight off atypical mycobacterium. 8 months was the worst, then a year break followed by another 6.5 months ending last January. Was going into the unit to stay one week a month as it was utterly exhausting and the side effects were nasty. Up at 7am every day and no day off at all not even for Christmas!
Also have ABPA under control but at the moment no pseud showing up. Have shown positive for Cepacia but turned out to be transient both times.
MRSA positive a few times too.
I've had a gastrostomy in the past to get my weight back up. I eat like a horse and am a stable weight now - also thanks to lots of steroids - so osteo issues and diabetic too.
My IV port is the best invention ever as I'd run out of veins for them to put lines in. I really rate it!
If you pop on www.cftrust.org you'll find lots of useful people there.
Oldest chap in my clinic is 55 and only just diagnosed. Oldest clinic attendee at the moment in the UK is around 80.
I've done masses with my life, just have to plan it all a bit more carefully these days!
Swimming 5 days a week was the best treatment ever. Became a competitive nut and also mad hockey player. Oh the days of being able to run without leaving my lungs half way down the field
Best wishes to your little lady
One of a whole bunch over here in their 30s to 60s. Have done some epic IV courses to fight off atypical mycobacterium. 8 months was the worst, then a year break followed by another 6.5 months ending last January. Was going into the unit to stay one week a month as it was utterly exhausting and the side effects were nasty. Up at 7am every day and no day off at all not even for Christmas!
Also have ABPA under control but at the moment no pseud showing up. Have shown positive for Cepacia but turned out to be transient both times.
MRSA positive a few times too.
I've had a gastrostomy in the past to get my weight back up. I eat like a horse and am a stable weight now - also thanks to lots of steroids - so osteo issues and diabetic too.
My IV port is the best invention ever as I'd run out of veins for them to put lines in. I really rate it!
If you pop on www.cftrust.org you'll find lots of useful people there.
Oldest chap in my clinic is 55 and only just diagnosed. Oldest clinic attendee at the moment in the UK is around 80.
I've done masses with my life, just have to plan it all a bit more carefully these days!
Swimming 5 days a week was the best treatment ever. Became a competitive nut and also mad hockey player. Oh the days of being able to run without leaving my lungs half way down the field
Best wishes to your little lady
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