Lupus? Something else?

[regchev]

Male, 32. I\'ve had about 7 years of illness now, and never really been satisfied with any diagnosis (I was labelled as having CFS as I think most are when other things have supposedly been ruled out).

Symptoms:
- Fatigue
- Bad frontal headaches, feeling of \"pressure\" in the eyes and sinuses (currently awaiting results of a head and neck MRI)
- Swollen (not always sore) throat, occassional hoarseness, neck and shoulder pain
- Occassional swollen lymph nodes in neck (collar bone area)
- Horrible taste in mouth, halitosis, feeling of trying to swallow thick mucus, bit of a blocked nose, dry mouth
- Bad acne flare ups on face and back and very greasy skin
- Eyes feel itchy/burning - bit bloodshot
- Hot flushes, night sweats
- my ribs are tender around the sides of the body (believe this is called costochondritis?)
- nausea and random mix of dihorrhea/constipation
- tests have shown consistantly both blood and protein in my urine - fully investigated and put down as idiopathic. However I continue to have pain (in the bladder?), need to go all the time, urine smells like nail polish remover...
- Get very, very cold hands and feet

2 years ago I randomly had acute pancreatitis followed by gallbladder removal via keyhole. Not overweight, non-drinker, non-smoker.

Had a rash a couple of times as well, most recently for the past few days coinciding with my symptoms increasing.





ANY advice, guidance, words of wisdom, anything would be most appreciated. I\'m so bored of all this and just want an answer.

Thank you.

[TedMaul]

Thats some list of symptoms my friend... I'm no doctor, obviously, but a great many of them sound potentially allergy or food intolernace related...

Fatigue
- Bad frontal headaches, feeling of \"pressure\" in the eyes and sinuses (currently awaiting results of a head and neck MRI)
- Swollen (not always sore) throat, occassional hoarseness, neck and shoulder pain
- Horrible taste in mouth, halitosis, feeling of trying to swallow thick mucus, bit of a blocked nose, dry mouth
- Bad acne flare ups on face and back and very greasy skin
- Eyes feel itchy/burning - bit bloodshot
- nausea and random mix of dihorrhea/constipation

I'm assuming these symptoms come and go, so if you haven't done already, have tried keeping a diary for a couple of weeks, each day write down what you do, where you go, how you feel (stressed, relaxed) and of course what you eat, how well you sleep and write down what symptoms are present - that way you might be able to see certain triggers / patterns for certain symptoms. Good luck as it sounds as miserable as when I was on gliclagize for my diabetes...

eta when I say make a list of what you eat, note the ingredients i.e don't write down "Lasagne" write down "Durum wheat, egg, beef mince, milk, cheese, tomatoes etc.."

Edited by TedMaul on Tuesday 6th October 13:13

[pixel chick]

Could be something in you diet, keep a diary of EVERYTHING you eat and note symptoms

Could be thyroid, have you been tested for this? It can cause a few of those symptoms

You may be dehydrated as well if your urine smells that bad

How much fluid are you drinking a day?

[regchev]

Thanks for the replies.

I have kept food diaries before but never really noticed any patterns. Maybe I need to try again and do it really properly.

I don't think I'm dehydrated either, drink a good amount.

[SMAK]

Have you ever been tested for LYME.