Ankylosing Spondylitis
Discussion
I've got this b
d of a disease...I know it's not a life ending thing, but fk me the pain is eye watering at times (like right now)
When i told my barber about it (he's seen me shuffle/wince into his shop far too many times..i've had this for years but only diagnosed 3 months ago) he said 'That's a funny name for a disease'
I was like this ====>
Yeah, well funny 
Anybody else got AS on here? TBH I'm only looking for advice on what drugs you lot are taking as the anti inflammatories and gastro tablets im taking dont seem to be doing jack squat for me at the mo
d of a disease...I know it's not a life ending thing, but fk me the pain is eye watering at times (like right now)When i told my barber about it (he's seen me shuffle/wince into his shop far too many times..i've had this for years but only diagnosed 3 months ago) he said 'That's a funny name for a disease'
I was like this ====>
Yeah, well funny Anybody else got AS on here? TBH I'm only looking for advice on what drugs you lot are taking as the anti inflammatories and gastro tablets im taking dont seem to be doing jack squat for me at the mo
No AS but I do have scoliosis and various other musculoskeletal stuff going on resulting in chronic pain and that fun fun NSAIDs and opioids combination.
Nice to 'meet' you.
Wossup? I'm on diclofenac and lotsalotsa other painkillers of various sorts, plus omeprazole for stomach protection.
Nice to 'meet' you. Wossup? I'm on diclofenac and lotsalotsa other painkillers of various sorts, plus omeprazole for stomach protection.
Very interesting condition. Hope you are seeing a rheumatologist. In the past we used to irradiate people with it! Now it's mainly NSAID's,conventinoal analgesics (co-whatevers).A number of people will find themselves eligible for anti TNF therapy.Short courses of steroids are not unreasonable and can help you get over a bad spell.HTH.
anonymous said:
[redacted]
Absolutely no chance of a jog here, I can barely walk/stand up.I've seen a rheumatologist (once) x-ray shows fusion of at least the bottom six vertebrae, they don't intend doing any more x-rays as I'm bent right over so its evident my neck and shoulders are also affected.
Currently Im on 500mg of Nabumetone once in the morning and twice at night...previously I was taking Dicloflex (50mg)
I can't say the Nabumtone are doing much good, I'm pretty much in pain 24/7....god knows I'm not going to stop taking them though
No sign of the promised outpatient physio/hydro therapy either.
I'm doing that instead of crying at the mo
My other half unfortunatley suffers from this. Started to get back problems at about 24, and has been gradually getting worse, she's 29 now. Early this year she was in so much pain particularly in the mornings that it was almost impossible for her to even get out of bed. She was on regular anti-inflammatories but they were having little effect.
After a lot of pushing we've managed to get her on Humira which is an injection she self administers every 2 weeks. It's not a cheap treatment so we had to push for it and she had to qualify however it's completely changed her life. She now rarely has a problem with her back and is at the gym most nights.
Cheers,
Graham
After a lot of pushing we've managed to get her on Humira which is an injection she self administers every 2 weeks. It's not a cheap treatment so we had to push for it and she had to qualify however it's completely changed her life. She now rarely has a problem with her back and is at the gym most nights.
Cheers,
Graham
Edited by ParanoidAndroid on Saturday 27th June 01:17
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