Discussion
My other half works for the meniere's society, a charity that raises awareness of meniere's disease and funds research into treatments - they can tell you what you need to know and point you in the direction of other people that can help - give them a ring they are very friendly!
http://www.menieres.org.uk/
Incidentally I am running the london 10K run in July to raise money for the meniere's society - http://www.justgiving.com/declanlondonrun
http://www.menieres.org.uk/
Incidentally I am running the london 10K run in July to raise money for the meniere's society - http://www.justgiving.com/declanlondonrun
declasm said:
never knew they existed, will have a look at that!Actually scratch that, just read a bit and I've decided I'd rather not know how bad it might get LOL.
Edited by Davi on Monday 18th May 15:43
Have you tried accupuncture?
MIL's partner has just been diagnosed with this in the last two weeks, he is in pretty bad shape at the moment. The most difficult thing for him to deal with is the tinnitus, he is half way through an accupuncture course which he thinks is helping, early days yet but I hope he learns to live with it.
MIL's partner has just been diagnosed with this in the last two weeks, he is in pretty bad shape at the moment. The most difficult thing for him to deal with is the tinnitus, he is half way through an accupuncture course which he thinks is helping, early days yet but I hope he learns to live with it.
Been off work for the last 2 weeks with labyrinthitis which is a similar condition, and I have to say it's a utterly horrendous illness which I wouldn't wish on anybody. I'd be very interested to hear anyone's experiences with this too. I was hoping I'd be on the road to recovery by now, but it hasn't got better (or worse) for over a week now and I'm thoroughly fed up with it. 
Davi said:
declasm said:
never knew they existed, will have a look at that!Actually scratch that, just read a bit and I've decided I'd rather not know how bad it might get LOL.
TheGreatSoprendo said:
Been off work for the last 2 weeks with labyrinthitis which is a similar condition, and I have to say it's a utterly horrendous illness which I wouldn't wish on anybody. I'd be very interested to hear anyone's experiences with this too. I was hoping I'd be on the road to recovery by now, but it hasn't got better (or worse) for over a week now and I'm thoroughly fed up with it.
The OH spent two months laid up with this a few years ago. Medication didn't help so Doctors told her to learn to compensate for the sensations and get on with it.She went to see an Osteopath who specialises in cranial manipulation. I had to help her in through the door and onto the couch, she walked out by herself. After a few days of neck roll type exercises she was back to normal. She's had no reoccurence since then.
Tons of information about it on the net, but a simple explanation can be found here
Babu - thanks for your post, that's very helpful, and thanks for the link, I hadn't seen that site before.
With regard to the doctor's advice of "compensate for the sensations and get on with it", I think that would be workable for me if it was just dealing with the dizzyness and nausea. My dizzyness isn't *too* bad - I do walk into the odd doorframe, but generally I can walk around the house quite normally. The nausea can be controlled with the medication I've been prescribed, albeit it makes you drowsy.
At the moment, though, the biggest issue I've got with trying to live a normal life is that I feel dog-tired constantly. I tend to sleep 10-11 hours at night, and have to force myself out of bed when I wake up even though I still feel incredibly tired. I'm sure I'd sleep for another few hours if I didn't. I then tend to sleep to some extent during the day which, depending on how I feel, can be anything from 45 mins to 3 or 4 hours.
That's the main reason I've been working from home for the last 2.5 weeks. It allows me to get up later (i.e. get out of bed and start work almost immediately), and also allows me to take naps as required during the day. I usually work for an hour or 2 and then need a break or a sleep before coming back to it. Because of that, rather than working a "normal" day I tend to work from about 9.30am until about 9.30pm, but the work is done is sporadic patches during those times rather than in one hit.
ETA - it's good to hear your OH made a full recovery, even if it did take 2 months. There are too many stories on the net of people who have suffered with this for many months or even years which, frankly, scare the crap out of me!
With regard to the doctor's advice of "compensate for the sensations and get on with it", I think that would be workable for me if it was just dealing with the dizzyness and nausea. My dizzyness isn't *too* bad - I do walk into the odd doorframe, but generally I can walk around the house quite normally. The nausea can be controlled with the medication I've been prescribed, albeit it makes you drowsy.
At the moment, though, the biggest issue I've got with trying to live a normal life is that I feel dog-tired constantly. I tend to sleep 10-11 hours at night, and have to force myself out of bed when I wake up even though I still feel incredibly tired. I'm sure I'd sleep for another few hours if I didn't. I then tend to sleep to some extent during the day which, depending on how I feel, can be anything from 45 mins to 3 or 4 hours.
That's the main reason I've been working from home for the last 2.5 weeks. It allows me to get up later (i.e. get out of bed and start work almost immediately), and also allows me to take naps as required during the day. I usually work for an hour or 2 and then need a break or a sleep before coming back to it. Because of that, rather than working a "normal" day I tend to work from about 9.30am until about 9.30pm, but the work is done is sporadic patches during those times rather than in one hit.
ETA - it's good to hear your OH made a full recovery, even if it did take 2 months. There are too many stories on the net of people who have suffered with this for many months or even years which, frankly, scare the crap out of me!
Edited by TheGreatSoprendo on Wednesday 20th May 10:28
Yup, she would often sleep 12-13 hours a day and then spend large parts of her waking hours crashed on the sofa. We were told that this was due to the labyrnthytis but when I did a little research into the medication she was on found that it was known to cause lethargy.
At one point she was prescribed a drug more usually used as an antiemetic for late stage Chemotherapy patients. It knocked her out for 24 hours straight and left her ridiculously confused when she came round. It was this which led her to the Osteopath's door.
The GP did the best he could to help her but on this occasion it seems that he did not have full access to all the tools required to do so. I would encourage you to do some digging of your own as that is the way in which we found the solution to her problem.
At one point she was prescribed a drug more usually used as an antiemetic for late stage Chemotherapy patients. It knocked her out for 24 hours straight and left her ridiculously confused when she came round. It was this which led her to the Osteopath's door.
The GP did the best he could to help her but on this occasion it seems that he did not have full access to all the tools required to do so. I would encourage you to do some digging of your own as that is the way in which we found the solution to her problem.
i have been suffering for many years(20ish) ,with periods of no problems at all ,
recently i saw a new GP ,
and have started on a course of "loratadine" and flixonase(spray) along with my regular tabs ,serc,stematil,and citalpram ,the combination seems to be working ,just get very tired quickly (no stamina)
also found red wine ,and whisky are bad triggers for setting it off ,especially if you have a cold or in my case cattargh.
also try and avoid cheese and excess salt ..
try and keep to regular meals and drink plenty of water ..
also find alot of people dont understand and think ,there is nothing wrong with you ..sometimes when its really bad the bed moves too much too sleep on(too soft) and i have to sleep on the bathroom floor to minimise any movement ...but still get nausea ....just have to try and sleep thru it ..
recently i saw a new GP ,
and have started on a course of "loratadine" and flixonase(spray) along with my regular tabs ,serc,stematil,and citalpram ,the combination seems to be working ,just get very tired quickly (no stamina)
also found red wine ,and whisky are bad triggers for setting it off ,especially if you have a cold or in my case cattargh.
also try and avoid cheese and excess salt ..
try and keep to regular meals and drink plenty of water ..
also find alot of people dont understand and think ,there is nothing wrong with you ..sometimes when its really bad the bed moves too much too sleep on(too soft) and i have to sleep on the bathroom floor to minimise any movement ...but still get nausea ....just have to try and sleep thru it ..
I was diagnosed with Meniere's and then labrynthitis for many years and was given a few different medications. Apart from all the physical symptoms the discomfort of it all used to make me very anxious. One thing that did aggravate it was alcohol. I was eventually referred to ENT where I was given tests. This involved amongst other things filling my ears with water and checking balance. Evenutally tests showed that I have a damaged balance organ of my inner ear. However when I was having these tests a large peice of wax had been pressing against my eardrum and it was removed. To this day, since those tests and having the wax removed I have not had the dizziness and symptoms associated with Meniere's or labrynthitis. I don't know why this is but I do know its a horrible condition to have.
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