Who looks after an infirm patient?
Who looks after an infirm patient?
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Discussion

Furbo

Original Poster:

3,908 posts

59 months

Saturday 18th July
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My elderly stepmother is unwell. The medics think it is her heart, but they ve just found a urinary infection which may be to blame.

A month ago, she could walk a mile with shopping. In the last week she has become unable to walk, dress or feed herself.

Yesterday, some sort of acute response carer visited, did little and said, I will come for five days, after that you have to pay for a carer .

It appears that she should be in a hospital, but the NHS is trying to keep her at home, despite her being unable to look after herself.

This seems odd to me. Long-term care for chronic health issues I can understand, perhaps. But this appears to be an acute condition and I would have thought the NHS should be dealing with it. But I must confess to knowing little about these things.

Anyone know about this?

Nicetobenice

1,114 posts

5 months

Saturday 18th July
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It's extremely difficult to get ongoing care in this situation.

If you think she should be in hospital then you will probably have to take her to a&e.


Furbo

Original Poster:

3,908 posts

59 months

Saturday 18th July
quotequote all
Ongoing suggests long-term. Which I might expect not to be paid for, if she has savings. But an acute condition that they are supposed to be resolving?


Doesitdrive

1,537 posts

8 months

Saturday 18th July
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I have a friend, 90 years old, been a full time carer for his bedridden wife for 3 years.

They get 3 5 minute carer appointments daily, that is it.

Recently he was diagnosed with diabetes, 2 months after that a doctor came out, his legs were swollen. Weeping sores, did absolutely fk all.

Been in and out of hospital all week, may have heart issues too but the GP that visited did fk all.

Complaint going in, another consultant and the hospital appears to be backing the complaint, this Gzp should not be practicing, but I ain't holding my breath when push comes to shove.

Country is fked tbh.

Nicetobenice

1,114 posts

5 months

Saturday 18th July
quotequote all
Furbo said:
Ongoing suggests long-term. Which I might expect not to be paid for, if she has savings. But an acute condition that they are supposed to be resolving?
And you may well be correct.

Good luck with getting the argument resolved in the timeframe required - which is the issue at hand.

If she's in A&E she's there problem to solve. At home she has to solve the problem on her own.

You could escalate to the manager of the carer who came round as they will be following a procedure of sorts

It's an absolute nightmare and tbh the path of least resistance will be to pay yourself then you've got some control.


Actual

1,681 posts

133 months

Saturday 18th July
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The NHS, local authority, doctor, hospice all have roles to play but you won't know what services could be provided and who can coordinate until it is too late.

When my dad came out of hospital he had a week of visits from the Reablement Service (part of Adult Services) who were like district nurses.

We were then supposed to organise a carer to take over but this would be an impossible task for us considering our lack of experience and knowledge in such matters and the complete lack of available carers,

Adult Services stated that they would organise a carer... If we agree to enter into a contract with your care provider, you will be charged a one-off fee of £296 and then £6 per week thereafter to cover our administration costs.

This was stated as if we would never agree to paying these charges but considering a carer was going to cost around £1K per month or even £1K a week I immediately took them up on the offer.

Not surprisingly Adult Services with all their resources could not find or arrange a carer and so the Reablement Service continued.

During this time he was assessed for carer charges according to his income and these were reasonable.

As my dad deteriorated further a live in carer was arranged who would travel down from Manchester to his location at Southampton but they cancelled and he died later that day.

gr86_driver

143 posts

20 months

Saturday 18th July
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I think it's relatively common for UTI in older women to present as your stepmother's has. Assume she's been given antibiotics. Fingers crossed she will recover well and be back to her independent self.

Mr.Chips

1,229 posts

241 months

Tuesday
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We’re currently going through something similar with my 91 year old aunt. She was diagnosed with dementia about 18 months ago and, despite having cataracts removed from both eyes, she is now registered as being blind. The local NHS and council have been doing everything they can to try and ensure that she stays at home. This is obviously not working as she has had several falls in the last month, culminating in a severe fall while getting into bed and suffering a broken leg.
My cousins (her daughters) are doing everything they possibly can to get the NHS/council to find a place in a nursing/care home for her, but because she does not own her own house, there is nothing happening. If she did own a property, there are a number of places within a 5 mile radius, that could take her quite quickly, but as it stands, we’re screwed! While in hospital, she has contracted an infection and I know how these can impact on the elderly as her sister (my late mother) had a number of UTI’s in the months leading up to her death.
You have my sympathy OP. It is a crap situation to be in. It seems incredibly unfair that you can pay taxes all of your working life and yet, when you need health/social care the most, you are largely on your own.
It is obvious that the current social care system is in crisis and is not fit for purpose. However, the amount of money needed to fix it makes me wonder if it will ever happen.

worsy

6,572 posts

202 months

Wednesday
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Mr.Chips said:
We re currently going through something similar with my 91 year old aunt. She was diagnosed with dementia about 18 months ago and, despite having cataracts removed from both eyes, she is now registered as being blind. The local NHS and council have been doing everything they can to try and ensure that she stays at home. This is obviously not working as she has had several falls in the last month, culminating in a severe fall while getting into bed and suffering a broken leg.
My cousins (her daughters) are doing everything they possibly can to get the NHS/council to find a place in a nursing/care home for her, but because she does not own her own house, there is nothing happening. If she did own a property, there are a number of places within a 5 mile radius, that could take her quite quickly, but as it stands, we re screwed! While in hospital, she has contracted an infection and I know how these can impact on the elderly as her sister (my late mother) had a number of UTI s in the months leading up to her death.
You have my sympathy OP. It is a crap situation to be in. It seems incredibly unfair that you can pay taxes all of your working life and yet, when you need health/social care the most, you are largely on your own.
It is obvious that the current social care system is in crisis and is not fit for purpose. However, the amount of money needed to fix it makes me wonder if it will ever happen.
https://www.nhs.uk/social-care-and-support/money-work-and-benefits/nhs-continuing-healthcare/