Raynauds

Author
Discussion

EdT

Original Poster:

5,136 posts

296 months

Tuesday 11th February
quotequote all
Over last few years, it's happened in my fingers when weather is like this (UK). Looking online for heated gloves just now, reviews are a broad mix of wonderful vs terrible, as in often the way. Recommendations?

Edited by EdT on Tuesday 11th February 14:05

uknick

968 posts

196 months

Tuesday 11th February
quotequote all
My partner tried various heated gloves, at the bottom of the price spectrum to be honest, and found they were all pretty rubbish in that they didn't last very long.

She now uses the "one use" hand warmers Tesco's sell by their pharmacies. At this time of year they're usually on offer at 4 for £5.

EdT

Original Poster:

5,136 posts

296 months

Tuesday 11th February
quotequote all
I walk the dogs a few times a day, so ideally a rechargeable something for me

Pete102

2,260 posts

198 months

Tuesday 11th February
quotequote all
EdT said:
I walk the dogs a few times a day, so ideally a rechargeable something for me
If you want a lasting, decent pair then look up heated ski gloves from a brand such as Therm-ic. Expect to pay north of 150 GBP though!

https://www.therm-ic.ch/en/collections/heated-ski-...

Alternatively, spend 100 or so on a good pair of fleeced ski gloves or mittens, not actively heated but should keep the cold at bay.

boyse7en

7,416 posts

177 months

Tuesday 11th February
quotequote all
Pete102 said:
If you want a lasting, decent pair then look up heated ski gloves from a brand such as Therm-ic. Expect to pay north of 150 GBP though!

https://www.therm-ic.ch/en/collections/heated-ski-...

Alternatively, spend 100 or so on a good pair of fleeced ski gloves or mittens, not actively heated but should keep the cold at bay.
Or heated motorcycle gloves.
I've got a pair of FIVE ones and they are great at stopping my fingers completely freezing solid. Batteries last around 5 or 6 hours

Armitage.Shanks

2,670 posts

97 months

Tuesday 11th February
quotequote all
As a sufferer of Raynauds that somehow came on in my mid 50s I sympathise with you. I'ver tried various options including the 'silver lined' liner gloves on the Rynauds website. They're not that good so I'd suggest cheapest ideally merino wool is a better option. For out with the dog then heated gloves is worth a try and something I need to progress.

From November to March I suffer to the point I get chilblains that hurt when knocked, take over a month to clear up and will spend most of the winter in fingerless mittens to try and keep them at bay. Tried various medication options and nothing has worked so far. I'm resigning myself to the fact I need to be in a warm climate over winter!






Arrivalist

1,088 posts

11 months

Tuesday 11th February
quotequote all
Hi OP,

This is my thread from November of last year which has a lot of different answers on it.

https://www.pistonheads.com/gassing/topic.asp?h=0&...

In the end my dad went with little hotties and gloves (not heated) from a Reynauds website.

usn90

1,720 posts

82 months

Tuesday 11th February
quotequote all
I have this in both hand and both feet.

I used to buy the one use hand warmer sachets but was going through 2 a day, I ended up buying some rechargeable ones of Amazon and have to say they are a god send, fit nicely in your pockets so there always there if you need them

dandarez

13,562 posts

295 months

Tuesday 11th February
quotequote all
usn90 said:
I have this in both hand and both feet.

I used to buy the one use hand warmer sachets but was going through 2 a day, I ended up buying some rechargeable ones of Amazon and have to say they are a god send, fit nicely in your pockets so there always there if you need them
Re my post on the other thread - yep, the rechargeable ones are a god send!
Currently, I take mine with me daily (or at least one of 'em). I was out for 5 hrs today and got back home still loads of charge left and hot.
Just shove it on recharge to get back to 100% and ready for next day.
All my old 'hotties' sachets and 'squeeze button' to heat ones given to charity shop.

usn90

1,720 posts

82 months

Tuesday 11th February
quotequote all
dandarez said:
usn90 said:
I have this in both hand and both feet.

I used to buy the one use hand warmer sachets but was going through 2 a day, I ended up buying some rechargeable ones of Amazon and have to say they are a god send, fit nicely in your pockets so there always there if you need them
Re my post on the other thread - yep, the rechargeable ones are a god send!
Currently, I take mine with me daily (or at least one of 'em). I was out for 5 hrs today and got back home still loads of charge left and hot.
Just shove it on recharge to get back to 100% and ready for next day.
All my old 'hotties' sachets and 'squeeze button' to heat ones given to charity shop.
It’s quite surprising how hot they actually get, certainly hotter than I was expecting, mine have 3 heat settings.

But yes, definitely recommend them to anyone suffering with cold hands


ATG

21,890 posts

284 months

Wednesday 12th February
quotequote all
FWIW, my wife's Raynaud's is incredibly sensitive to her caffeine intake. If she drinks real coffee on a coldish day, her fingers turn yellow. Drink decaf instead and they're fine. It's like a switch.

EdT

Original Poster:

5,136 posts

296 months

Thursday 13th February
quotequote all
ATG said:
FWIW, my wife's Raynaud's is incredibly sensitive to her caffeine intake. If she drinks real coffee on a coldish day, her fingers turn yellow. Drink decaf instead and they're fine. It's like a switch.
If I dont have my daily dose, I'm no good for anything

Armitage.Shanks

2,670 posts

97 months

Friday 14th February
quotequote all
ATG said:
FWIW, my wife's Raynaud's is incredibly sensitive to her caffeine intake. If she drinks real coffee on a coldish day, her fingers turn yellow. Drink decaf instead and they're fine. It's like a switch.
I was told to stop caffeine albeit I only drink tea. I went on decaf tea, didn't like it and it made no difference so went back to normal tea.

There's a few other meds that have had positive trial results - Fluoxetine (Prozac) and Sildenafil (Viagra). The former has side effects that can be unpleasant and make you limp, whereas the latter has some upside but is expensive to prescribe rolleyes I'm on the fence at the minute with trying one of these given other stuff I've tried never worked and fear that taking the former will likely require a supply of the latter for when that moment arises (or not as the case may be).

I'd appreciate the link to the heated gloves you bought so i can actually buy a pair that do work.

henrytvr

243 posts

155 months

Friday 14th February
quotequote all
I have suffered with this since my early 20s, now i'm in my early 30's the pain and colour can get quite bad. I work outside and need to use my hands/fingers so wearing gloves is not an option. Interested to hear what people take, Viagra is one I haven't heard of before!

ATG

21,890 posts

284 months

Friday 14th February
quotequote all
Armitage.Shanks said:
ATG said:
FWIW, my wife's Raynaud's is incredibly sensitive to her caffeine intake. If she drinks real coffee on a coldish day, her fingers turn yellow. Drink decaf instead and they're fine. It's like a switch.
I was told to stop caffeine albeit I only drink tea. I went on decaf tea, didn't like it and it made no difference so went back to normal tea.

There's a few other meds that have had positive trial results - Fluoxetine (Prozac) and Sildenafil (Viagra). The former has side effects that can be unpleasant and make you limp, whereas the latter has some upside but is expensive to prescribe rolleyes I'm on the fence at the minute with trying one of these given other stuff I've tried never worked and fear that taking the former will likely require a supply of the latter for when that moment arises (or not as the case may be).

I'd appreciate the link to the heated gloves you bought so i can actually buy a pair that do work.
Yeah, wife finds tea makes almost no difference. Either tea contains bugger all caffeine compared to coffee, or it's in a complex that stops you metabolising it, or something, because I've never heard anyone claim tea keeps you awake the way coffee can do, nor have I met anyone who has got addicted to tea the way I know some people are genuinely addicted to coffee and get withdrawal symptoms like banging headaches if they cut back.

RizzoTheRat

26,505 posts

204 months

Friday 14th February
quotequote all
My wife wears wrist warmers a lot which she reckons make a big difference, this kind of thing
https://www.amazon.co.uk/DWE-Cashmere-Fingerless-G...

She has a pocket warmer that burns charcoal sticks and runs for several hours on a stick, and reuseable heat packs that don't last that long.
https://www.amazon.co.uk/Highlander-Solid-Warmer-G...

If you go the electric route, as above look at motorbike kit, not cheap but made for lots of wind-chill. Many manufacturers do heated glove liners that would make more sense than an armoured bike gauntlet for your use. You can also get electric heat pads that you put in to your own gloves, but we've not tried those.

She also reckons ginger and ginko biloba both help.


Not sure if it's the same for Reynauds, but as a biker I find keeping more core warm makes a huge difference to my extremities, and an electric heated waistcoat keeps me toasty.

Edited by RizzoTheRat on Friday 14th February 12:03

Armitage.Shanks

2,670 posts

97 months

Friday 14th February
quotequote all
henrytvr said:
I have suffered with this since my early 20s, now i'm in my early 30's the pain and colour can get quite bad. I work outside and need to use my hands/fingers so wearing gloves is not an option. Interested to hear what people take, Viagra is one I haven't heard of before!
I was referred to a specialist in rheumatology via my GP, having a chest x-ray and every blood test you can possibly have to rule out Lupus or something else unpleasant. If medication doesn't work (as in my case) they referred me for a capilliaroscopy and thermography test (putting hands in buckets of warm water, taking them out and measuring how long it takes for your hands to get warm; and looking at the capiliaries under a microscope) to rule out connective tissue disease leaving you with the Raynauds diagnosis. Not all HNS trusts have this facility so you may have to travel out of area.

The Consultant offered me Fluoxetine when I told him the Nifedipene didn't work but I wasn't 'warming' to the likely side effects. Viagra was mentioned by my GP when I casually discussed I'd still got the issue on a routine appointment but he'd have to refer me back to the Consultant to agree/prescribe it. If you Google 'medication for Raynauds' it will throw up the various options inlcuding the ones I've mentioned. Plenty of research papers available.

This winter is the worst it's been for me with the near constant cold weather, I also get the chilblains on my toes but it's the sores on the hands especially over the finger joints that make it unpleasant.

I like the idea of heated motorcyle gloves for out walking the dog. It's a step closer to buying another motorbike