NHS 'Guidelines'

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Upinflames

Original Poster:

1,758 posts

185 months

Wednesday 1st November 2023
quotequote all
So the suggested treatment for my partner's cancer has changed due to 'New guidelines'.

I don't believe them. We have an appointment with the surgeon next week, can I ask to see these 'Guidelines'?

Bill

54,255 posts

262 months

Wednesday 1st November 2023
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Why don't you believe them? Guidelines change to match new evidence all the time.

bigpriest

1,805 posts

137 months

Wednesday 1st November 2023
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Of course you can ask - it's probably related to National Guidance which is usually the National Institute for Health & Care Excellence. You can see guidance on their site.

NICE

Brainpox

4,138 posts

158 months

Wednesday 1st November 2023
quotequote all
Yes ask to see them. If the team can't provide a copy on the day then you might get hold of one via PALS.

Try and approach it positively though. There most likely is a solid evidence based reason for the change which you might find educational and interesting. It's a bit odd to say you don't believe them when you have no background to judge it. You want them on your side.

If it turns out to be a funding thing then certainly get as pissy as you need to about it.

Edited by Brainpox on Wednesday 1st November 20:56

Upinflames

Original Poster:

1,758 posts

185 months

Thursday 2nd November 2023
quotequote all
Brainpox said:
Yes ask to see them. If the team can't provide a copy on the day then you might get hold of one via PALS.

Try and approach it positively though. There most likely is a solid evidence based reason for the change which you might find educational and interesting. It's a bit odd to say you don't believe them when you have no background to judge it. You want them on your side.

If it turns out to be a funding thing then certainly get as pissy as you need to about it.

Edited by Brainpox on Wednesday 1st November 20:56
it's a local funding thing I'm sure, the procedure she needs is being carried out elsewhere and at short notice.

Riley Blue

21,634 posts

233 months

Thursday 2nd November 2023
quotequote all
Upinflames said:
Brainpox said:
Yes ask to see them. If the team can't provide a copy on the day then you might get hold of one via PALS.

Try and approach it positively though. There most likely is a solid evidence based reason for the change which you might find educational and interesting. It's a bit odd to say you don't believe them when you have no background to judge it. You want them on your side.

If it turns out to be a funding thing then certainly get as pissy as you need to about it.

Edited by Brainpox on Wednesday 1st November 20:56
it's a local funding thing I'm sure, the procedure she needs is being carried out elsewhere and at short notice.
If you're sure then it's not NICE guidelines you want, it's your local NHS Integrated Care Board:

https://www.nhs.uk/nhs-services/find-your-local-in...

Chromegrill

1,100 posts

93 months

Thursday 2nd November 2023
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Upinflames said:
it's a local funding thing I'm sure, the procedure she needs is being carried out elsewhere and at short notice.
Of course ask what guidelines the decision is based on, but cancer care can be a rapidly evolving field as new evidence emerges. And bear in mind that what's done elsewhere might or might not still be considered best practice, better than alternatives or even helpful compared to doing nothing.

pavarotti1980

5,463 posts

91 months

Friday 3rd November 2023
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Upinflames said:
So the suggested treatment for my partner's cancer has changed due to 'New guidelines'.

I don't believe them. We have an appointment with the surgeon next week, can I ask to see these 'Guidelines'?
If you like send me PM

My day job (pharmacist) deals with this sort of thing. Implementation of NICE guidance, commissioning of drug treatments in a large teaching trust. Cancer is one of our big specialties and funding and treatment is national unless treatment is only provided by specialist centres.

Riley Blue said:
If you're sure then it's not NICE guidelines you want, it's your local NHS Integrated Care Board:

https://www.nhs.uk/nhs-services/find-your-local-in...
Drug funding for cancer is not done locally by ICB/ICS, it is part of NHSE Specialised Commissioning and the ICB will have little idea as to the nuances of its funding.

Edited by pavarotti1980 on Friday 3rd November 09:01

Riley Blue

21,634 posts

233 months

Friday 3rd November 2023
quotequote all
pavarotti1980 said:
Drug funding for cancer is not done locally by ICB/ICS, it is part of NHSE Specialised Commissioning and the ICB will have little idea as to the nuances of its funding.

Edited by pavarotti1980 on Friday 3rd November 09:01
Understood, I didn't take 'treatment' to mean just drugs.