Post Vax Issues - Low Plate

Post Vax Issues - Low Plate

Author
Discussion

WinkleHoff

Original Poster:

744 posts

240 months

Saturday 16th September 2023
quotequote all
Hi All,

This one isn't about the politics or any other matter, except for health.

I have vaccine induced thrombocytopenia (low plate count). Last July I had a fairly significant collapse incident at work and spent three days in hospital. My plate levels recently were 23000, before that they were 46000 and before that 24000. So fluctuating a bit.

I am under the care of hematology, and have another appointment next week. I have been trying supplements and diet to try and induce a higher plate count.

I have a weird tiredness that comes and goes, joint pain, fatigue. I get the occasional spinning feeling in my head sometimes and short bouts of nausea.

I would welcome anyone's experience with this, and any advise on how to get plate count up.

Thanks.

RichPu

25 posts

180 months

Sunday 17th September 2023
quotequote all
I had the Moderna Vax in Dec21 in Jan 22 I woke up deaf in both ears, also I was complaining on strange aches/pains in my arms, during this time as well, I was exhausted. it was brushed off as listening fatigue due to having to concentrate more trying to hear and understand people.

I continued to have the crippling fatigue and strange pains, these strange pains were getting worse and worse to the point of sharp stabbing pains every few seconds all over my body

all my joints hurt like crazy, feeling like me bones hurt, if I close my eyes I feel like i'm slowly spinning to the left

reason for this background, is that i had numerous blood tests and finally they did an anti-ccp blood test normal range 0-20 mine 2776.

Ended up at hospital with a rheumatologist, they diagnosed rapid onset of Rheumatoid arthritis and Fibromyalgia. (and still deaf)

I have only had this diagnosis about 4 weeks ago.

but your description of tiredness, joint pain, fatigue sounds like what I was having.
Hope this helps



Edited by RichPu on Sunday 17th September 16:15

wattsm666

698 posts

270 months

Sunday 17th September 2023
quotequote all
WinkleHoff said:
Hi All,

This one isn't about the politics or any other matter, except for health.

I have vaccine induced thrombocytopenia (low plate count). Last July I had a fairly significant collapse incident at work and spent three days in hospital. My plate levels recently were 23000, before that they were 46000 and before that 24000. So fluctuating a bit.

I am under the care of hematology, and have another appointment next week. I have been trying supplements and diet to try and induce a higher plate count.

I have a weird tiredness that comes and goes, joint pain, fatigue. I get the occasional spinning feeling in my head sometimes and short bouts of nausea.

I would welcome anyone's experience with this, and any advise on how to get plate count up.

Thanks.
I had VITT and had low platelets. I wasn’t allowed out of hospital until they got back to 150,000 from the 15,000 low they hit. I was given something to stop the reaction and then a platelet transfusion/plasma.

After I left they dropped again, was given a massive dose of steroids - that worked then they went again. Was threatened with immmuosuppresents and eventually they corrected.

WinkleHoff

Original Poster:

744 posts

240 months

Monday 18th September 2023
quotequote all
Thanks all for the responses. This is all very concerning.

My plate ha snot improved, today hematologist called me and advised I'm at 21000. Some of my plates are sticking together, probably meaning a higher reading, but it's in no way normal. I am going to be prescribed steroids for 4/6 weeks with a blood test during to see what that does.

Interesting g that they wouldn't let you leave hospital at 15000. I'm not much more than that! Hemo seemed okay with the fact that I'm not bleeding from anywhere.

I have such regret because I had the vax when my gut was telling me no....

motco

16,167 posts

251 months

Monday 18th September 2023
quotequote all
I had the Moderna in April 2022, after having had AZ and Pfizer previously with no ill effects. Within a short time I had haematuria (blood in urine), and epistaxis (nosebleeds). The epistaxis was unprovoked and quite severe - upwards from 60 - 100 drips per minute but never more than ten minutes in duration. After a few weeks both symptoms disappeared and have not returned since. Weird but one of the contraindications for the Moderna vaccine is any bleeding disorders.

RoadToad84

723 posts

39 months

Monday 18th September 2023
quotequote all
Not sure if this helps, but my mum has genetic thrombophilia, meaning her plate count is too high, and she's on lifelong blood thinning meds.
She's always been advised to avoid high levels of vitamin K (found in dark green leafy veg, and Guinness) as this can cause further clotting and exacerbate her condition.

If you're having the opposite problem, then maybe worth looking into increasing vit K?


vindaloo79

984 posts

85 months

Monday 18th September 2023
quotequote all
Quoted poorly: I have a weird tiredness that comes and goes, joint pain, fatigue. I get the occasional spinning feeling in my head sometimes and short bouts of nausea.

A lot of those symptoms remind me of Lymes disease (profuse night sweats omitted), has that been ruled out? Acute joint pain especially.

WinkleHoff

Original Poster:

744 posts

240 months

Monday 18th September 2023
quotequote all
vindaloo79 said:
Quoted poorly: I have a weird tiredness that comes and goes, joint pain, fatigue. I get the occasional spinning feeling in my head sometimes and short bouts of nausea.

A lot of those symptoms remind me of Lymes disease (profuse night sweats omitted), has that been ruled out? Acute joint pain especially.
Yes that's ruled out. My joint pain is kind of dull and intermittent and accompanied with tiredness that isnt resolved by more sleep. Although I could do with more sleep!

wattsm666

698 posts

270 months

Tuesday 19th September 2023
quotequote all
This is worth a read about tiredness etc

https://bmjopen.bmj.com/content/13/7/e072658

My issue was caused by AZ, was yours the same vaccine?


WinkleHoff

Original Poster:

744 posts

240 months

Tuesday 19th September 2023
quotequote all
wattsm666 said:
This is worth a read about tiredness etc

https://bmjopen.bmj.com/content/13/7/e072658

My issue was caused by AZ, was yours the same vaccine?
Yes AZ too. Now withdrawn (quietly).

https://www.bhf.org.uk/informationsupport/heart-ma...

MitchT

16,142 posts

214 months

Tuesday 19th September 2023
quotequote all
WinkleHoff said:
Hi All,

This one isn't about the politics or any other matter, except for health.

I have vaccine induced thrombocytopenia (low plate count). Last July I had a fairly significant collapse incident at work and spent three days in hospital. My plate levels recently were 23000, before that they were 46000 and before that 24000. So fluctuating a bit.

I am under the care of hematology, and have another appointment next week. I have been trying supplements and diet to try and induce a higher plate count.

I have a weird tiredness that comes and goes, joint pain, fatigue. I get the occasional spinning feeling in my head sometimes and short bouts of nausea.

I would welcome anyone's experience with this, and any advise on how to get plate count up.

Thanks.
Same here with the tiredness, joint pain and fatigue. When I get up from sitting I feel like an old man. I'm 48, in relatively good shape and had none of these issues before. It's like I've been to the gym for the first time in years and this is the morning after when I can hardly move - but it's every time I get up. I do plenty of exercise but, equally, I'm not a fitness fanatic who'd be prone to overdoing it, so there's no reason why I should feel like this. Also dry, sticky mouth - it's like I've been licking envelopes and postage stamps all day, blurred vision and a hot, burning sensation on the surface of my skin, particularly on my arms and legs, accompanied by the occasional sensation like I'm being splashed with warm water!

All started after the two AZ shots. I didn't have any more after the AZ ones as I was becoming increasingly disturbed by the way anyone who questioned the vax was being gaslit by the media, medical profession and vax evangelists among their peers... silenced or called "conspiracy theorist", "fake news", etc. That was enough for me. No more and I wish I hadn't had the first two either.

Prof Prolapse

16,160 posts

195 months

Tuesday 19th September 2023
quotequote all
MitchT said:
All started after the two AZ shots. I didn't have any more after the AZ ones as I was becoming increasingly disturbed by the way anyone who questioned the vax was being gaslit by the media, medical profession and vax evangelists among their peers... silenced or called "conspiracy theorist", "fake news", etc. That was enough for me. No more and I wish I hadn't had the first two either.
All the symptoms you describe are well documented as sequalae from "long covid", how do you know it wasn't that and was instead the vaccine (which is well documented as not causing those symptoms)?



Prof Prolapse

16,160 posts

195 months

Tuesday 19th September 2023
quotequote all
WinkleHoff said:
Yes AZ too. Now withdrawn (quietly).

https://www.bhf.org.uk/informationsupport/heart-ma...
Withdrawn as it is not effective.

Not withdrawn due to safety concerns.

All entirely predictable.



WinkleHoff

Original Poster:

744 posts

240 months

Tuesday 19th September 2023
quotequote all
Prof Prolapse said:
Withdrawn as it is not effective.

Not withdrawn due to safety concerns.

All entirely predictable.
Not so sure about that....

https://time.com/5947134/astrazeneca-covid-vaccine...

https://www.theguardian.com/uk-news/2022/aug/16/no...

https://www.bmj.com/content/373/bmj.n1489

Yes, there is an effectiveness angle to this, but against effectiveness also comes consideration of emerging risk. I doubt the government would focus on the risk component and would prefer to focus on effectiveness.

Back on topic around specifc health and dealing with this, I found an interesting journal here that may be of use to people, regarding the use of CLPE supplements and effectiveness on plate production.

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC72194...



RichPu

25 posts

180 months

Tuesday 19th September 2023
quotequote all
bit more info from me.
I had 2 AZ and the booster was Moderna.

I've have been told that I'm a vax nut, a conspiracy crazy. where in reality I'm vax injured. ( I regret having the vax)
I used to train everyday, think nothing of dead lifting 200kg, squatting 170kg. These days, I can hardly function, I struggle to cut a block of cheese, pour milk into a cup of tea. climb stairs or walk. all this in addition to the deafness.

when you have been made deaf, crippled, 24/7 constant pain and exhaustion, your view of things change.
even my Dr is saying it looks like the vax caused an autoimmune response in your body which is ongoing...

there is information available here.

vaccine adverse event reporting system.
https://vaers.hhs.gov/data/datasets.html

someone has helpfully pulled this data into a searchable model here.
https://knollfrank.github.io/HowBadIsMyBatch/HowBa...
you can get your batch number from the nhs app

you can also pull some data from Yellowcard adverse reaction data.
https://coronavirus-yellowcard.mhra.gov.uk/datasum...

it's scary.

looking on yellow card for Moderna I have seen over 360 people suffer just hearing issues.

edited to add . I'm 52


Edited by RichPu on Tuesday 19th September 11:45

WinkleHoff

Original Poster:

744 posts

240 months

Tuesday 19th September 2023
quotequote all
RichPu said:
bit more info from me.
I had 2 AZ and the booster was Moderna.

I've have been told that I'm a vax nut, a conspiracy crazy. where in reality I'm vax injured. ( I regret having the vax)
I used to train everyday, think nothing of dead lifting 200kg, squatting 170kg. These days, I can hardly function, I struggle to cut a block of cheese, pour milk into a cup of tea. climb stairs or walk. all this in addition to the deafness.

when you have been made deaf, crippled, 24/7 constant pain and exhaustion, your view of things change.
even my Dr is saying it looks like the vax caused an autoimmune response in your body which is ongoing...

there is information available here.

vaccine adverse event reporting system.
https://vaers.hhs.gov/data/datasets.html

someone has helpfully pulled this data into a searchable model here.
https://knollfrank.github.io/HowBadIsMyBatch/HowBa...
you can get your batch number from the nhs app

you can also pull some data from Yellowcard adverse reaction data.
https://coronavirus-yellowcard.mhra.gov.uk/datasum...

it's scary.

looking on yellow card for Moderna I have seen over 360 people suffer just hearing issues.

edited to add . I'm 52


Edited by RichPu on Tuesday 19th September 11:45
Good grief.

My hematologist said it was entirely possible, even likely, that my issues are caused by vaccination. It floored me when they said this. The blood test data I had before vax (for something else) was normal plate function.

Funny you should say about hearing, I also have tinnitus onset, but may well totally unrelated however.

I'm so sorry for your issues.

RichPu

25 posts

180 months

Tuesday 19th September 2023
quotequote all
you mention tinnitus, Yeap. that is one thing that I can hear really well. 24/7 since the deafness, it drives me crazy. had 2 MRi's of my head to check for any issues, but apparently all ok.

from some research I did when I lost my hearing.

"The cochlea and the inner ear hair cells have ace 2 receptors. It understood s1 protein (spike)attaches to these and then becomes target for your immune system causing the tinnitus and vertigo"

They gave me steroids for inflammation, oral and direct injection into the ear through the ear drum. (nice) but couldn't save the hearing, I have hearing aids and was learning BSL until the Rheumatoid Arthritis has crippled my fingers.... takes ages to type stuff lol

It's all inflammation

Nemophilist

3,057 posts

186 months

Tuesday 19th September 2023
quotequote all
WinkleHoff said:
Hi All,

This one isn't about the politics or any other matter, except for health.

I have vaccine induced thrombocytopenia (low plate count). Last July I had a fairly significant collapse incident at work and spent three days in hospital. My plate levels recently were 23000, before that they were 46000 and before that 24000. So fluctuating a bit.

I am under the care of hematology, and have another appointment next week. I have been trying supplements and diet to try and induce a higher plate count.

I have a weird tiredness that comes and goes, joint pain, fatigue. I get the occasional spinning feeling in my head sometimes and short bouts of nausea.

I would welcome anyone's experience with this, and any advise on how to get plate count up.

Thanks.
My son has (Chronic ITP) thrombocytopenia since the age of 2 and spent quite a lot of time at GOSH when his levels dropped down to less than 5000.
When really low he has gobulin transfusions.
Other than that, even with lower than normal levels they just keep an eye on him. We generally ensure he rests and has a healthy diet with protein and vegetables (more difficult in a fussy child)
If you like Tonic water make sure you're not drinking that as that can lower your platelet levels too.


WinkleHoff

Original Poster:

744 posts

240 months

Tuesday 19th September 2023
quotequote all
RichPu said:
you mention tinnitus, Yeap. that is one thing that I can hear really well. 24/7 since the deafness, it drives me crazy. had 2 MRi's of my head to check for any issues, but apparently all ok.

from some research I did when I lost my hearing.

"The cochlea and the inner ear hair cells have ace 2 receptors. It understood s1 protein (spike)attaches to these and then becomes target for your immune system causing the tinnitus and vertigo"

They gave me steroids for inflammation, oral and direct injection into the ear through the ear drum. (nice) but couldn't save the hearing, I have hearing aids and was learning BSL until the Rheumatoid Arthritis has crippled my fingers.... takes ages to type stuff lol

It's all inflammation
My wife had heart issues after, which eventually settled down. Now has an arthritic condition. I have a client who has the same. Just too much of this in healthy 40yr old people.

Wow. I had a massive "vertigo" type event which caused me to collapse. I was sat at my desk and it felt like my head exploded and span so fast that I collapsed, was continually sick, and my blood pressure went to my boots. I was taken off to A&E and stayed for three days. I still get the odd spinning bout.


Prof Prolapse

16,160 posts

195 months

Tuesday 19th September 2023
quotequote all
WinkleHoff said:
Prof Prolapse said:
Withdrawn as it is not effective.

Not withdrawn due to safety concerns.

All entirely predictable.
Not so sure about that....

https://time.com/5947134/astrazeneca-covid-vaccine...

https://www.theguardian.com/uk-news/2022/aug/16/no...

https://www.bmj.com/content/373/bmj.n1489

Yes, there is an effectiveness angle to this, but against effectiveness also comes consideration of emerging risk. I doubt the government would focus on the risk component and would prefer to focus on effectiveness.

Back on topic around specifc health and dealing with this, I found an interesting journal here that may be of use to people, regarding the use of CLPE supplements and effectiveness on plate production.

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC72194...
I'm not sure what you're getting at. Those articles support everything I've said?

From your Guardian article; "“It was a fantastic vaccine, and it still is a fantastic vaccine for the world … and the population which received AstraZeneca vaccines of course got very good protection from it,” he told BBC Radio 4’s Today programme on Tuesday. “But the way that the taskforce has decided to purchase the vaccines, we are using mRNA vaccines now.”"

From your paper; "Asiz Sheikh, lead study author and professor of primary care research and development at the University of Edinburgh, told a press briefing: “This is reassuring data and the benefits of the AstraZeneca vaccine greatly outweigh the risks.”

Your Time article is from 2021 so it isn't really worth mentioning either way, but the quote from AZ states, "The company also noted that so far, among the millions vaccinated in the E.U. and U.K., just 15 have developed DVT, or blood clots in vein blood vessels, and 22 have developed clots in the lungs that originated elsewhere and traveled to pulmonary arteries. Those figures, AstraZeneca said, are much lower than the number of cases expected to occur naturally in that population.

I'm not disputing the existence of side effects, but they are extremely small in number, and largely unproven to be related the vaccine.