Misophonia - a strong negative reaction to common sounds

Misophonia - a strong negative reaction to common sounds

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joropug

Original Poster:

2,669 posts

194 months

Tuesday 28th March 2023
quotequote all
Just wanted to put this out there to see if anyone has any tips for dealing with this.

I haven't been to a Dr or anything for this but believe I have a touch of Misophonia which is effectively a strong/disproportionate reaction to certain noises, such as chewing, coughing, tapping etc.

For me it is less human behaviour, more environmental. Things that drive me mad:

-Car interior rattles - I have spent hours and hours trying to locate and fix rattles in our cars, pretty much every car I have ever owned. This one probably resonates with PHers more than others but my friends/family can never even hear what I'm talking about yet I am completely zoned in on them and unable to ignore it.

-Water dripping - Again probably quite a common one but a dripping gutter, tap, etc keeps me awake even if it's a tiny noise. Ear plugs help.

and the most recent one, which is actually causing me physical stress - A neighbours wooden wind chime.

I should add I am calm and logical day to day, don't suffer with anxiety and on the whole manage a stressful job well.

But in the longer term, if anyone else suffers with this - have you found anything effective in dealing with it? It's easy to say ignore it and get on with your life but it's like when you say to someone DON'T THINK ABOUT MONKEYS. You can't not.


Edited by joropug on Tuesday 28th March 13:27

dingg

4,183 posts

224 months

Tuesday 28th March 2023
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You need to see your doctor, as you probably know.

Things can get on your nerves but not to the extent you're experiencing.

Good luck finding a remedy.

macdaddy11

59 posts

180 months

Tuesday 28th March 2023
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I think 'misophonia' is a relatively new discovery, and probably not something that a lot of people, including doctors, actually understand. I expect it is probably over self-diagnosed, much like ADHD etc.

That said, I do sympathise with you as I experience the same kind of thing. Other people eating, especially loud sounds like eating a raw carrot, water dripping, or the blinds knocking against the wall in a breeze, idiots at 11pm onwards at night revving the nuts of their 4-pot a good couple of miles away. The list is endless, and it can be anything, and it can keep me up all night.

It's a sensitivity to sound, which can mean you really enjoy music, in all it's depth and intricacies, but day to day, can be infuriating. Especially at night, when the relative peace of the hour makes any small sound appear louder. You could ask your neighbours to move their windchime, and tell them it is bothering you, assuming you get on with them, it might not be a problem. It's a hard one to explain to people, it's not a loud sound, but it is just triggering something in your head that causes stress.

In my experience, putting on some music helps if you can't stop the sound. Focus on the music rather than the sound that is bothering you, and hopefully the brain will stay fixed on this and allow you some rest, if not full on sleep. Some people use white noise apps, for the same reason. Complete silence puts the brain on alert for any unusual sounds, so something minor that distracts it can often help. Other than that, earplugs if you can sleep with them in and during the day, I've always resorted to headphones of some description, with a pod cast or a decent music playlist.

I'd be interested to hear what a doctor thinks, but I'd be surprised if much can be done outside of ear plugs. 'Flare' do auditory protection and other things that may be of interest, they do an ear plug (the Audio Calmer) that is open and cuts out certain frequencies or something (apparently), I didn't get on with them, but you might... Good luck.

joropug

Original Poster:

2,669 posts

194 months

Tuesday 28th March 2023
quotequote all
macdaddy11 said:
I think 'misophonia' is a relatively new discovery, and probably not something that a lot of people, including doctors, actually understand. I expect it is probably over self-diagnosed, much like ADHD etc.

That said, I do sympathise with you as I experience the same kind of thing. Other people eating, especially loud sounds like eating a raw carrot, water dripping, or the blinds knocking against the wall in a breeze, idiots at 11pm onwards at night revving the nuts of their 4-pot a good couple of miles away. The list is endless, and it can be anything, and it can keep me up all night.

It's a sensitivity to sound, which can mean you really enjoy music, in all it's depth and intricacies, but day to day, can be infuriating. Especially at night, when the relative peace of the hour makes any small sound appear louder. You could ask your neighbours to move their windchime, and tell them it is bothering you, assuming you get on with them, it might not be a problem. It's a hard one to explain to people, it's not a loud sound, but it is just triggering something in your head that causes stress.

In my experience, putting on some music helps if you can't stop the sound. Focus on the music rather than the sound that is bothering you, and hopefully the brain will stay fixed on this and allow you some rest, if not full on sleep. Some people use white noise apps, for the same reason. Complete silence puts the brain on alert for any unusual sounds, so something minor that distracts it can often help. Other than that, earplugs if you can sleep with them in and during the day, I've always resorted to headphones of some description, with a pod cast or a decent music playlist.

I'd be interested to hear what a doctor thinks, but I'd be surprised if much can be done outside of ear plugs. 'Flare' do auditory protection and other things that may be of interest, they do an ear plug (the Audio Calmer) that is open and cuts out certain frequencies or something (apparently), I didn't get on with them, but you might... Good luck.
Cheers appreciate the reply - It only occurred to me the other day that it wasn't 'normal' to be honest, when a mate said he would tell me to F off if I asked him to remove a wind chime (he has other issues evidently).

I had actually asked the neighbour a couple of weeks ago and it was really pleasant and offered to take it down, but actually moved it further away instead. It actually caused even more noise due to being in a windier/swayier location. I had to speak to them about something unrelated and kindly asked them again and he is taking it down - They are nice about it and understand. It hasn't helped that it is very windy at the moment and we live atop a hill, the wind carries over the top of it and makes for a windier back garden.

So that one is hopefully sorted.

It's interesting that I am not bothered by noisy eaters etc - it really is just environmental for me. I don't get angry/stressed about some things though. Mentioned the rattle, for me its more of a hunt - Turning the radio on to try and identify the cause etc, I think rattles are the worst thing for me because they can be resolved if you have the tenacity to find them. Once I know what is causing a rattle, it bothers me less too even if I haven't fixed it.

I do listen to music a lot, podcasts too, but I also need to read quite detailed documents and need quiet sometimes.

One of things I don't know what a Dr would even suggest for this as I assume it is psychological and about managing it in the same sense someone who has anger, stress, depression, anxiety manages their ailments.

Pieman68

4,264 posts

239 months

Tuesday 28th March 2023
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Other people chewing is a major one for me - my stepson is terrible for it and I often have to leave the room. I also used to work with a guy and I would walk out of the office when he got his lunchbox out

macdaddy11

59 posts

180 months

Tuesday 28th March 2023
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I'm glad to hear you've got a nice neighbour, I guess some people (like your mate) would take a personal offence to it. So childish. I'd be round there with a bottle of wine, or a 4-pack of something nice, a little gesture goes a long way and keeps everything friendly. I know what you mean about finding the source of the sound, I've been up at 4 in the morning outside the house searching for the source of the drip, drip, drip. I can't rest until I've found it and usually fixed it, but knowing what the sound is certainly helps.

I'm sure it is psychological too, so if there is a coping technique it would be good to know. It seems like it is not that uncommon, but hard to explain to someone who just doesn't get it.

@pieman - yep all to familiar. I find it can make me go from 0 to almost a full on rage in a matter of seconds if I'm not careful. I'm sure I'm not perfect either, and I know it isn't personal or intentional (usually), but doesn't make it any less irritating!

Krhuangbin

967 posts

136 months

Wednesday 29th March 2023
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I really "suffer" with this.

Rather than normal background noise, it's normally connected directly with what I think is "inconsiderate" behavior.

E.g if some cretin is playing their ste music loud from a phone on a train or in public - it genuinely stresses me out and makes me feel angry and physically tense. As I type, I've sat in the quiet corner of a pub to catch up on some emails, and a group of otherwise nice, non-scummy boys, have sat down and are having a few beers being rowdy (things I probably do on a night out anyway.) Talking inane bks and practically shouting at each other. It's making me brim with rage and tense up, and I know it's my problem not theirs.

Crying babies make me genuinely feel sick too - I absolutely cannot bear it.

I also have what I can only describe as a very very sensitive "cringe" reflex, for example if there is someone on TV auditioning for a singing competition or whatever, and they are bad, I genuinely cannot even bear to watch or listen to it and have to cover my ears hehe

Or if someone i'm with complains in a restaurant for trivial things, I want the ground to open up and can't even look at the interaction

Edited by Krhuangbin on Wednesday 29th March 17:04


Edited by Krhuangbin on Wednesday 29th March 17:06

Panamax

4,695 posts

39 months

Wednesday 29th March 2023
quotequote all
joropug said:
the most recent one, which is actually causing me physical stress - A neighbours wooden wind chime.
It's not just you - those things are the devil's work!

Realistically there's no alternative but to ask the neighbour to get rid of it in consideration of annoying other people.

itcaptainslow

3,789 posts

141 months

Wednesday 29th March 2023
quotequote all
Krhuangbin said:
I really "suffer" with this.

Rather than normal background noise, it's normally connected directly with what I think is "inconsiderate" behavior.

E.g if some cretin is playing their ste music loud from a phone on a train or in public - it genuinely stresses me out and makes me feel angry and physically tense. As I type, I've sat in the quiet corner of a pub to catch up on some emails, and a group of otherwise nice, non-scummy boys, have sat down and are having a few beers being rowdy (things I probably do on a night out anyway.) Talking inane bks and practically shouting at each other. It's making me brim with rage and tense up, and I know it's my problem not theirs.

Crying babies make me genuinely feel sick too - I absolutely cannot bear it.

I also have what I can only describe as a very very sensitive "cringe" reflex, for example if there is someone on TV auditioning for a singing competition or whatever, and they are bad, I genuinely cannot even bear to watch or listen to it and have to cover my ears hehe

Or if someone i'm with complains in a restaurant for trivial things, I want the ground to open up and can't even look at the interaction

Edited by Krhuangbin on Wednesday 29th March 17:04


Edited by Krhuangbin on Wednesday 29th March 17:06
I didn’t realise there was a name for it, but, wow - you’ve just described my reaction to a tee.

If someone is about to eat loudly, I genuinely have to walk out of the room.

W201_190e

12,738 posts

218 months

Monday 3rd April 2023
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I can’t stand the sound of some people eating. It makes me apoplectic at times. I cannot be in the same room as some people when they eat. It’s better if I’m also eating, weirdly. I also can’t stand the sound of chapping lips, biting nails. Also, even if I cannot hear them, if I see someone eating with their mouth open, I have the same reaction. I’ve had to walk out of movies if there are eating scenes. It’s just an unexplainable hatred of those sounds, that causes me real stress and discomfort. Very few people understand. One of my sisters also suffers just as much as I do.

It isn’t a pleasant way to live, but I have struggled to cope with it for over 25 years. I’ve been aware of “misophonia” for at least 15 years.

Trevor555

4,488 posts

89 months

Tuesday 4th April 2023
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I've had this since I was 14 when I had my first row with my Dad about his noisy eating.

It's got continually worse as I've aged.

Two years ago I had to leave my family home to live by myself.

Mine is mostly people related.

The worst one's for me are people eating noisily, talking whilst eating, tapping noises (especially fingernails on hard surface), people stirring coffee cups, tapping of cutlery, people yawning loudly, people laughing loudly, any sort of fidgeting, and loud people in general.

Sometimes I can bear it for a little while if I know I can escape if I want to, but if I have no exit I have a panic attack if I don't have my ipod with me.

I haven't found a cure, most people just think I'm very odd.

Some people have suggested more exposure to these sounds, but I can assure you, that would never work for me.

If I get a really bad reaction I shut myself away for a couple of days.

I also can't stand people whistling, which it not normally associated with Misophonia, no idea on that one. But I have to leave the room/area.

I don't blame other people for the noises, I accept it's my problem, and I accept that it's me who has to escape the situation rather than expecting them to stop.

I don't mind people laughing at me about it, but when my daughter had a go at me about it, that was the trigger to leave family home.

For anyone who doesn't believe in it, trust me, for bad sufferers like me it's very, very bad.

The only solution I have is leaving the situation, or ipod on and eyes shut (Busses & trains)

It's also been suggested I may be autistic, can't stand pop ups on computers/phones, don't like people getting too close to me if I don't know them, get very frustrated if some thing doesn't work. I don't think I'm autistic, online test result isn't that high.

I can go out socialising, but I tend to stand very close to the people I'm with, they say it's almost like I hide behind them sometimes lol... A pub with background noise is better than a quiet room like a coffee shop.

Anyhow, there it is, feel free to have a giggle, I don't mind.

OP if you want to PM me to chat in person I'm happy to do that, but sadly I can't offer you a cure. For me it's live alone, and always keep the ipod charged.



Edited by Trevor555 on Tuesday 4th April 02:06

Master Of Puppets

3,379 posts

67 months

Tuesday 4th April 2023
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I have this for a couple of things, the worst is the adverts for chocolate covered ice lollies like Magnums, the cracking noise at it gets
bitten into and the close up view just drives me insane, if I see that ad starting the TV gets immediately switched off, other adverts
with food going into mouths close up get a similar reaction but the cracking lollies is the worst.

The other one is Sturgeons voice. mad

Disastrous

10,126 posts

222 months

Tuesday 4th April 2023
quotequote all
All of these sound quite rooted in feelings of lack of control to me.

Would be interesting to understand what kind of role sufferers do in their day job.

I have quite a high-pressure job and whilst sound doesn’t bother me at all, when it’s really piling up on me, I notice that I can get irrationally stressed by things outwith my control: traffic jams, being late, queues etc.

It manifests in quite a strong sense of anger at the people I perceive as being the cause of it but I’m self-aware enough to swallow it and take a step back.

Anyway, I’m not a psychiatrist but the way the OP describes the ‘hunt’ for a rattle makes me feel like it’s a form of externalising stress elsewhere.

joropug

Original Poster:

2,669 posts

194 months

Tuesday 4th April 2023
quotequote all
Trevor555 said:
I've had this since I was 14 when I had my first row with my Dad about his noisy eating.

It's got continually worse as I've aged.

Two years ago I had to leave my family home to live by myself.

Mine is mostly people related.

The worst one's for me are people eating noisily, talking whilst eating, tapping noises (especially fingernails on hard surface), people stirring coffee cups, tapping of cutlery, people yawning loudly, people laughing loudly, any sort of fidgeting, and loud people in general.

Sometimes I can bear it for a little while if I know I can escape if I want to, but if I have no exit I have a panic attack if I don't have my ipod with me.

I haven't found a cure, most people just think I'm very odd.

Some people have suggested more exposure to these sounds, but I can assure you, that would never work for me.

If I get a really bad reaction I shut myself away for a couple of days.

I also can't stand people whistling, which it not normally associated with Misophonia, no idea on that one. But I have to leave the room/area.

I don't blame other people for the noises, I accept it's my problem, and I accept that it's me who has to escape the situation rather than expecting them to stop.

I don't mind people laughing at me about it, but when my daughter had a go at me about it, that was the trigger to leave family home.

For anyone who doesn't believe in it, trust me, for bad sufferers like me it's very, very bad.

The only solution I have is leaving the situation, or ipod on and eyes shut (Busses & trains)

It's also been suggested I may be autistic, can't stand pop ups on computers/phones, don't like people getting too close to me if I don't know them, get very frustrated if some thing doesn't work. I don't think I'm autistic, online test result isn't that high.

I can go out socialising, but I tend to stand very close to the people I'm with, they say it's almost like I hide behind them sometimes lol... A pub with background noise is better than a quiet room like a coffee shop.

Anyhow, there it is, feel free to have a giggle, I don't mind.

OP if you want to PM me to chat in person I'm happy to do that, but sadly I can't offer you a cure. For me it's live alone, and always keep the ipod charged.



Edited by Trevor555 on Tuesday 4th April 02:06
Sorry to hear that - The reaction it gives me is trivial in comparison can't imagine what that must be like.

In fact I have been thinking about my reaction in particular to the wind chimes - I think it was a mixture of both the noise being irritating, but amplified by the human decision behind the decision to deploy them.

I.e.

Person A makes decision to place loud object in back garden that makes a noise 24/7, it is obvious that the neighbours will also be able to hear it and have no option to turn it off - I cannot understand the logic and decision making process and therefore it grates me more than it otherwise would.

Another hypothetical example would be if a neighbour's gate is banging in the wind at night, you can hear it, so you know they can hear it and it's probably keeping them up too, but they can't be arsed to get up and sort it. That decision to let the noise continue winds me up more than the noise itself.

Today is the first day I have worked from home since they have been put down, it is so nice - I have the window open, birds are chirping (a background noise that doesn't annoy me!) - It is really lovely unspoiled sound.

Trevor555

4,488 posts

89 months

Tuesday 4th April 2023
quotequote all
joropug said:
In fact I have been thinking about my reaction in particular to the wind chimes - I think it was a mixture of both the noise being irritating, but amplified by the human decision behind the decision to deploy them.
I've tried to analyse why I don't like certain noises.

Certainly one is similar to yours, I think "why does that person think we all want to listen to them whistling?" especially some where like a restaurant, coffee shop, pub etc.. But why don't I like whistling? I've no idea..

I've no idea about the tapping noises, I get really frustrated with my self when I have to do a runner from somewhere.

Another poster wondered about how we cope in working conditions?

I'm currently helping out in a workshop environment, general workshop noise is ok, occasionally monotonous songs on the radio set me off, but general workshop noises are ok. If a customer comes in whistling I have a problem, I stay well away from people eating.

I've been travelling around the UK buying cars for the past 15 years, mostly on trains. I just use the ipod, and usually I'm only with customers for an hour when I get there.

There's no way I could work constantly with anyone who fidgeted, whistled, ate loudly, talked whilst eating, loud people in general.

It's got far, far worse in recent years for me (Age 52 now)

OP if you do seek treatment in any way, let me know what they say please. Although I'm happy enough now that I live alone, and can choose entirely what I do, and where I go, and when I choose to leave/run away lol

Edited by Trevor555 on Tuesday 4th April 19:28