Pulmonary Embolism
Discussion
Hey all,
To cut a long story short I had a fast-track CT scan to check for lung cancer last week after a few months of issues. I heard today that I've got a Pulmonary Embolism and have been given blood-thinning meds etc.
Very sobering when the first words my GP said were "that scan saved your life!".. I've got a consultation at the hospital later in the week to find out all the details but I had to be put on the meds urgently today.
Anyway, the reason for the post was to see if anyone had experience with Pulmonary Embolism.. how you got on etc.
Thanks..
To cut a long story short I had a fast-track CT scan to check for lung cancer last week after a few months of issues. I heard today that I've got a Pulmonary Embolism and have been given blood-thinning meds etc.
Very sobering when the first words my GP said were "that scan saved your life!".. I've got a consultation at the hospital later in the week to find out all the details but I had to be put on the meds urgently today.
Anyway, the reason for the post was to see if anyone had experience with Pulmonary Embolism.. how you got on etc.
Thanks..
I've had one, following a biopsy that identifed stage 4 lung cancer. I took apixaban for a year. There were side effects that were apparently unique to me, or possibly in my imagination. Nonetheless, I took the decision to stop taking a blood thinner, and I'm still alive and kicking. That was three month ago.
Obviously, I've still got lung cancer. I'd imagine if a PE was my only problem, I'd still be taking the apixaban.
Obviously, I've still got lung cancer. I'd imagine if a PE was my only problem, I'd still be taking the apixaban.
Mrs 22 had a PE, incredibly painful and uncomfortable. Possibly, for her, it was the body's way of flagging something else as a later scan (due to Covid, otherwise would have been consultant meeting) showed a stage 4 cancer (and another one for good measure). PE was late 2020. She's still on Apixaban but now a half-measure and, as with some of the above, it's sadly the least of her worries.
12/04/21.
Had met up with some mates for the pubs reopening (in the car park..classy I know)
Mild discomfort in my chest, but nothing major.
But my brain started going haywire, I have never had anything like it happen before, something was wrong but couldn't say what.
Walked the 1/2 mile back home.
My partner knew as I walked in something was wrong, but again apart from slight discomfort nothing obvious.
After 10 minutes of discussion she decided to phone 999. Me arguing and felling like a complete fraud.
A Paramedic arrived within minutes, told me I was tachycardic (sp?)
An ambulance ride later I'm in the hospital on a drip and CT followed.
PE diagnosed, a few days in hospital and then discharged.
I feel very lucky that it was caught early.
Now on Apixiban indefinitly.
Trust what your brain is trying to tell you at all times! I still can't quite describe that very strange feeling.
Gav
Had met up with some mates for the pubs reopening (in the car park..classy I know)
Mild discomfort in my chest, but nothing major.
But my brain started going haywire, I have never had anything like it happen before, something was wrong but couldn't say what.
Walked the 1/2 mile back home.
My partner knew as I walked in something was wrong, but again apart from slight discomfort nothing obvious.
After 10 minutes of discussion she decided to phone 999. Me arguing and felling like a complete fraud.
A Paramedic arrived within minutes, told me I was tachycardic (sp?)
An ambulance ride later I'm in the hospital on a drip and CT followed.
PE diagnosed, a few days in hospital and then discharged.
I feel very lucky that it was caught early.
Now on Apixiban indefinitly.
Trust what your brain is trying to tell you at all times! I still can't quite describe that very strange feeling.
Gav
Mrs had one.
We went to a&e at around midnight and got discharged at 5am undiagnosed.
Pretty much as soon as we got home they called asking how quickly we could get back to the hospital. Did a load more tests and finally administered anti clotting drugs at 4pm.
Mrs was 10 weeks pregnant at the time. She had to inject anti clotting drugs for the rest of the pregnancy. Must have cost the NHS a fortune.
She had dreadful care throughout and nearly bled out at birth because nobody managed the process properly despite us being reassured at every hospital visit that measures would be in place for the birth.
She doesn’t seem to have any lasting effects now, 5 years later.
We went to a&e at around midnight and got discharged at 5am undiagnosed.
Pretty much as soon as we got home they called asking how quickly we could get back to the hospital. Did a load more tests and finally administered anti clotting drugs at 4pm.
Mrs was 10 weeks pregnant at the time. She had to inject anti clotting drugs for the rest of the pregnancy. Must have cost the NHS a fortune.
She had dreadful care throughout and nearly bled out at birth because nobody managed the process properly despite us being reassured at every hospital visit that measures would be in place for the birth.
She doesn’t seem to have any lasting effects now, 5 years later.
Hi All
Thanks for everyone's input... I had a follow-up CT scan a few weeks ago but have since started getting some discomfort again. I've seen the radiographer's review of my scan on my NHS record but I am currently awaiting feedback from the respiratory consultant.
"The previously noted consolidation in the inferolateral aspect of the left lower lobe is reduced in size and currently rounded density of size 17 mm persisting thought to be rounded atelectasis."
Has anyone had any ongoing issues after a Pulmonary Embolism/Pulmonary Infracture or atelectasis as described above?..
Thanks
Thanks for everyone's input... I had a follow-up CT scan a few weeks ago but have since started getting some discomfort again. I've seen the radiographer's review of my scan on my NHS record but I am currently awaiting feedback from the respiratory consultant.
"The previously noted consolidation in the inferolateral aspect of the left lower lobe is reduced in size and currently rounded density of size 17 mm persisting thought to be rounded atelectasis."
Has anyone had any ongoing issues after a Pulmonary Embolism/Pulmonary Infracture or atelectasis as described above?..
Thanks
Sorry to hear of your PE.
As a word of caution, based on my wife’s experience, take the PE seriously, there can be a low-risk link between PE and an early cancer diagnosis.
My wife had a PE on return from holiday last September, initially this was put down to the flight (3 hrs from Greece) and she was put on Apixaban to treat the PE and potential reoccurrence.
By December she had blood in her stools and a colonoscopy subsequently found lower colorectal cancer.
She’s since been treated for that (Google APER) and now has a permanent colostomy.
My word of caution relates to the link between PE and cancer.
Although there have been a number of formal studies, there is no firm link, BUT in places such as the US they routinely scan for cancer as a direct consequence of the PE.
Unfortunately we don’t in the UK and this might be to your detriment.
As a word of caution, based on my wife’s experience, take the PE seriously, there can be a low-risk link between PE and an early cancer diagnosis.
My wife had a PE on return from holiday last September, initially this was put down to the flight (3 hrs from Greece) and she was put on Apixaban to treat the PE and potential reoccurrence.
By December she had blood in her stools and a colonoscopy subsequently found lower colorectal cancer.
She’s since been treated for that (Google APER) and now has a permanent colostomy.
My word of caution relates to the link between PE and cancer.
Although there have been a number of formal studies, there is no firm link, BUT in places such as the US they routinely scan for cancer as a direct consequence of the PE.
Unfortunately we don’t in the UK and this might be to your detriment.
hing about what Rolex they cant get!! Well good luck to all on here and hope you get better. I was on my daily cycle ride two weeks ago when I couldn't pedal any further. A visit to A&E followed where I was diagnosed with bilateral pulmonary embolism which has caused heart strain. One stomach injection then Apixoban for 3 months (at least) before a visit to the respiratory clinic and a scan to check progress.
I feel fine and am back cycling though I'm yet to tackle a decent incline.
I feel fine and am back cycling though I'm yet to tackle a decent incline.
Cant really add anything relevant to the OP but my experience was multiple PEs in one hit slap bang mid-covid so that made it fun! Blue light to A&E and 3 nights on a respiratory ward. Apixaban and loads of other meds which control the underlying cause with subsequent follow ups every 3 months and echocarido etc etc (again all in covid so bit complicated).
Subsequently nothing, lung funcion back above average for age, still monitored and medicated but now doing a job at least 3 times more physical than before, much harder hours and loving it.
Respiratory consultant has passed me back to the other departments dealing with the underlying reason, the PEs were just a "symptom" apparently so everyting else aside the PE's are not an issue long term just something I have to be aware of and avoid potential clot triggers again.
Subsequently nothing, lung funcion back above average for age, still monitored and medicated but now doing a job at least 3 times more physical than before, much harder hours and loving it.
Respiratory consultant has passed me back to the other departments dealing with the underlying reason, the PEs were just a "symptom" apparently so everyting else aside the PE's are not an issue long term just something I have to be aware of and avoid potential clot triggers again.
Hello All
OP here.. well finally (6 months late!) I had my review with the consultant yesterday. Need to have another CT scan and blood screening as they think there may be something autoimmune going on, possibly antiphospholipid syndrome...
Has anyone had any experience with antiphospholipid syndrome or blood clot-related autoimmune issues?
Ta
OP here.. well finally (6 months late!) I had my review with the consultant yesterday. Need to have another CT scan and blood screening as they think there may be something autoimmune going on, possibly antiphospholipid syndrome...
Has anyone had any experience with antiphospholipid syndrome or blood clot-related autoimmune issues?
Ta
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