What The Fudge Is Happening To Me - Heart Issue

What The Fudge Is Happening To Me - Heart Issue

Author
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TheGreatDane

Original Poster:

363 posts

75 months

Friday 28th January 2022
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Hi All,

Semi plea for help/rant.

I am currently going via private healthcare but I am at my ends wit and I am losing my mind over this, so was wondering if anyone else may have experienced something similar that could ease my mind or help me cope in the interim.

A quick run through of my 2021:

Spinal fusion surgery - April
1st Pfizer jab - End of May
1 day of heart palpitations - 1st week of June
2nd Pfizer jab - End of July
Booster - 17th Dec

On the 22nd of December working at home I felt hot all of a sudden and my hands went numb, this was followed by my face getting extremely flush and I knew something was off. Then my heart starting beating very hard to the point it felt like someone was tapping my chest firmly and my breathing felt restricted along with a tight chest. This continued for 15 mins but ignored it thinking it is nothing as a one off episode like last time.

I quit coffee for the next few days just as a precaution (for reference I have one cup a day in the morning, no other teas etc).

29th December I have coffee again, the heart thumping, numbness and light headedness returns after 15 mins after a few quiet days. I have 9-10 episodes throughout the day and an ambulance is called who checked everything and said all stats are normal. They said they need to catch an episode when it happens. Advise to go hospital if it happens again.

1st of Jan I wake up at 6am drenched in sweat, struggling to breathe and my heart is pounding again as severe as the episode on the 22nd of Dec - I am taken to hospital which resulted in a 13 hr stay. Blood tests & x ray done and they say nothing is wrong I just can't handle caffeine. I hadn't had caffeine since the 29th.

Since then I have had on and off episodes which are completely random and not triggered by anything specific. I could be sitting watching tv and it starts, conversely I could be doing my rehab and I'm fine.

Going private I have had a echocardiogram which the technician said looked normal but doc needs to review, alongside wearing a Zio XT ecg for 2 weeks which was sent for analysis on Tuesday.

I woke up again at 6.30am this morning and had 3 mini episodes lasting 2-3 mins each. Had 2 on Tue, 2 on Monday and 4 on Sunday.

I am losing my mind and sad to say getting some pretty awful thoughts despite otherwise being very content with life.

I have been feeling rotten for over a month now and its ground me down to a pulp.

The vaccine can be ruled out as a cause as I have no signs of pericarditis or myocarditis from bloodwork and scans.

Prior to all this bar my spinal fusion I was in very good health, non smoker, active gym goer and no family history of heart issues.

Can anyone who may have experienced anything similar shed some light on what it was how they coped etc?



Scrump

22,748 posts

163 months

Friday 28th January 2022
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Sorry to hear that you are suffering.
Are you on any pain relief medication after the spinal surgery or have you recently stopped taking any?

TheGreatDane

Original Poster:

363 posts

75 months

Friday 28th January 2022
quotequote all
I was given Tramadol but didn't take it as I coped with the pain fine and the fusion has been a success going by my last scan.

Currently not taking any other medication.

Zuckerman

31 posts

144 months

Friday 28th January 2022
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They sound like panic attacks, which apparently you can get in your sleep

Scrump

22,748 posts

163 months

Friday 28th January 2022
quotequote all
TheGreatDane said:
I was given Tramadol but didn't take it as I coped with the pain fine and the fusion has been a success going by my last scan.

Currently not taking any other medication.
That is a great result on the surgery.

TheGreatDane

Original Poster:

363 posts

75 months

Friday 28th January 2022
quotequote all
Zuckerman said:
They sound like panic attacks, which apparently you can get in your sleep
I thought that initially but if I get up from sitting, the heart pounding starts for 3-5 seconds.

And yep very pleased with the spinal surgery outcome.

Road2Ruin

5,389 posts

221 months

Friday 28th January 2022
quotequote all
Sounds like paroxysmal (par-ok-siz-mul) atrial fibrillation. Quite common, especially when people get older. If it gets worse they may put you on beta blockers and warfarin. The only real risk is blood clots long term.

Mojooo

12,966 posts

185 months

Friday 28th January 2022
quotequote all
Presumably you are off the caffiene?

Road2Ruin

5,389 posts

221 months

Friday 28th January 2022
quotequote all
Mojooo said:
Presumably you are off the caffiene?
No. It can be triggered by many things, caffeine being one. Some people it's stress, others exercise and some...who knows.

Donbot

4,110 posts

132 months

Friday 28th January 2022
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Possibly GERD or some other stomach related issue . That can cause the symptoms you're describing.

Tends to be triggered by things which irritate the gut such as eating large meals, spicy food, caffeine, alcohol etc. Also eating shortly before bed. Doesn't always happen straight after eating, and can be triggered by a change of position.

Have you noticed any reflux / bloating / stomach irritation?

anonymous-user

59 months

Friday 28th January 2022
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Myocarditis? Some people would suggest related to CV19 vaccine.
Now, getting a healthcare professional to go anywhere near that hot patato will be another matter.
Good luck.

rfisher

5,024 posts

288 months

Friday 28th January 2022
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24 hour urine 5HT assay.

GP should be able to request it.

TheGreatDane

Original Poster:

363 posts

75 months

Friday 28th January 2022
quotequote all
Haven't had caffeine since the 29th, it's still happening.

No acid reflux or anything of that sort (someone did say it could possibly be stomach related) but I did notice around the time this all started my bowel habits changed from regular to infrequent but no constipation.

As mentioned in an earlier post there is no pericarditis or myocarditis, X ray, blood work and echo had confirmed this. It isnt vaccine related but I relayed my vaccine info to give the complete picture.

Right now I feel fine, no tight chest but very slight nausea. In a few seconds that can change very quickly.

RSTurboPaul

11,169 posts

263 months

Friday 28th January 2022
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YorkshireWhisky said:
Myocarditis? Some people would suggest related to CV19 vaccine.
Now, getting a healthcare professional to go anywhere near that hot patato will be another matter.
Good luck.
+1


Two incidences of unexpected heart problems beginning, both closely related temporally to having injections of a novel-technology under Emergency Authorisation Use only.

I know you have said 'The vaccine can be ruled out as a cause as I have no signs of pericarditis or myocarditis from bloodwork and scans' but other adverse reactions have been recorded.


You should report your reaction on the Yellow Card system so that it may add to the data that is being collected on adverse reactions:

https://coronavirus-yellowcard.mhra.gov.uk


Previous reports on reactions reported are available here:

https://www.gov.uk/government/publications/coronav...


Cardiac issues start on page 5 of the most recent report on Pfizer:

https://assets.publishing.service.gov.uk/governmen...






TheGreatDane

Original Poster:

363 posts

75 months

Friday 28th January 2022
quotequote all
I reported my symptoms on the yellow card scheme last week.

What's done is done I guess, going back I would 100% avoid the booster but I just want to get back to normal.

I'm genuinely terrified of going to sleep for fear of having another episode.

Centurion07

10,395 posts

252 months

Friday 28th January 2022
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What's happening mentally when you have the physical symptoms?

RSTurboPaul

11,169 posts

263 months

Friday 28th January 2022
quotequote all
TheGreatDane said:
I reported my symptoms on the yellow card scheme last week.

What's done is done I guess, going back I would 100% avoid the booster but I just want to get back to normal.

I'm genuinely terrified of going to sleep for fear of having another episode.
Good stuff on reporting it.

I'm sorry to hear you have regrets. Many would claim their is no link (including those in the medical profession) but it all seems too... coincidental...

The concerning thing to me is that various Governments across the world are attempting to link your vaccination status to your freedoms, and openly stating 4th and 5th injections might be needed, with no consideration of those like you.


Make sure to keep a diary or a log of how you are feeling - if there is a pattern, it will be useful to spot it, and it might be useful in terms of understanding 'Long Vaccine Reaction' in the same way 'Long Covid' is being looked at.


If it is random then I don't think there is much you can do about it, so arguably whether you are awake or asleep there is nothing that can be done and you might as well try to get some rest, which is very important to get - stressing about it possibly happening is likely to increase stress hormones in the body, which might itself trigger things off!

Easy to write, harder to do, of course.


I hope you feel better soon. You are definitely not alone in your situation but you may have trouble seeking similar experiences and advice on the social networks because a lot seems to get censored.

TheGreatDane

Original Poster:

363 posts

75 months

Friday 28th January 2022
quotequote all
Centurion07 said:
What's happening mentally when you have the physical symptoms?
I could be completely calm with not a single thought in my head.

When an episode starts I think great here we go and just resign to feeling like I'm about to die/pass out.

I was in a minor RTA last week and not a single palpitation.

Genuinely baffles me.

Centurion07

10,395 posts

252 months

Friday 28th January 2022
quotequote all
Do those thoughts occur because you know what's coming or do you think they're a symptom themselves?

What's the actual emotion? Feelings of dread?

briefcasebob

57 posts

58 months

Friday 28th January 2022
quotequote all
I think the possibilities here are either a primary cardiac arrhythmia (atrial fibrillation or supraventricular tachycardia) or a hormone disorder, specifically excess adrenaline or 5HT secretion.

The former would be picked up on the long-term ECG which you had, the latter would be picked up by looking for hormone breakdown products in urine. Either issue can be fixed by Clever doctors

Based on the symptoms you report I would not write this off as panic or reflux until all of the tests are completed

(I am a doctor, but I am not a Clever doctor (cardiologist or endocrinologist depending on the diagnosis))