Oxygen Generators

Author
Discussion

Armchair Expert

Original Poster:

2,981 posts

79 months

Wednesday 19th May 2021
quotequote all
My mother has breathing problems, Doctors don't seem to be able to resolve the trouble, most say it is her heart except the cardiologists who say it is not. She struggles to breath especially when lying down. Asked for oxygen and to be referred to the respiratory clinic but this has been declined.

Looking at oxygen generators seems that there are the concentrators, nebulisers and the Cpap machines, anyone can advise, our GP are being useless as is the cardiology nurse, the cardiology Doctors have given up and no longer have access to them.

Anyone with any suggestions?

rfisher

5,024 posts

288 months

Wednesday 19th May 2021
quotequote all
Normal course of action would be that the cardiologist suggests referral to a chest physician via the GP, having excluded a cardiac cause.

Some cardiologists will just assume that the GP will refer on and not explicitly suggest it to the GP.

If you don't have power of attorney for health & welfare then the GP may not pay you much attention.

I wouldn't use any oxygen concentrating equipment without having a diagnosis.

You may do more harm than good.


Armchair Expert

Original Poster:

2,981 posts

79 months

Saturday 22nd May 2021
quotequote all
rfisher said:
Normal course of action would be that the cardiologist suggests referral to a chest physician via the GP, having excluded a cardiac cause.

Some cardiologists will just assume that the GP will refer on and not explicitly suggest it to the GP.

If you don't have power of attorney for health & welfare then the GP may not pay you much attention.

I wouldn't use any oxygen concentrating equipment without having a diagnosis.

You may do more harm than good.
There does not seem to be any communication at all!

Mum ended up in hospital Thursday, Friday consultant came along and told her she won't be going home before Wednesday, 30 minutes later a nurse tells her she is discharged.

Asked GP for advice regarding the oxygen generator who told me to see her consultant (different one than the one who came to see her Friday) to who I have no contact details to.

rfisher

5,024 posts

288 months

Saturday 22nd May 2021
quotequote all
Sounds like you're going to have to stop being Mr Niceguy with the GP.

They will be getting a letter from the hospital relating to you mum's stay.

You need to know what it says.

The magic words for NHS related feckwittery are 'PALs' for hospitals and 'formal complaint' for GPs.

Attaboy.

Piersman2

6,627 posts

204 months

Saturday 22nd May 2021
quotequote all
As said above, you need to start pushing and challenging the NHS to get it to do anything 'joined up' these days, it seems GPs have all but given up actually looking out for their patients. This has certainly been my impression of seeing two family members die over the last 5 years and other interactions of family and freinds whilst they were getting treatment.

No one seems to holistically look at what if happening to a patient anymore, I'm sure a good few years back that GPs fulfilled that role and would ensure that a patients needs were being met and tracked. But it seems not now.

Until you get belligerent they will do the absolute minimum, so keep pushing for them to actually work out what the underlying issue is, I mean FFS, I could be something bloody serious, and if what I saw is anything to go by, they'll spend so long fannying around passing from pillar to post, it becomes untreatable before anyone works out what it is, assuming they do actually ever work it out.

Keep sending her back to the GP until they sort it out, it's not 'normal' to need an oxygen generator to be able to lie down, And get in there and kick up a fuss. The treatment of my OH's father massively improved in hospital after our ex-matron nurse neighbour phoned the ward and starting asking some pointed questions about basic levels of care... like were they monitoring fluids, were they actually making sure he was eating his food, etc... didn't fundementally alter his outcome, but saved him spending his last few days/weeks being stuck in the corner of the wrong ward and left to starve/dehydrate to death.

You can probably tell I've become somewhat dissolutioned with the ability of the NHS and related care services over the last 5 years based on what I've seen first hand and been told by others about their treatment!