Cochlear implant - anyone got one?

Cochlear implant - anyone got one?

Author
Discussion

TheJimi

Original Poster:

25,750 posts

250 months

Wednesday 1st January 2020
quotequote all
Having lost a huge chunk of what hearing I had (deaf in one ear, hearing aid in the other) I'm now faced with a cochlear implant being my only option if I want functioning hearing again.

Anyone got an implant and willing to share their experiences?

Gameface

16,565 posts

84 months

Wednesday 1st January 2020
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I'm sorry to hear (no pun intended) that mate.

Hope you're ok.

TheJimi

Original Poster:

25,750 posts

250 months

Wednesday 1st January 2020
quotequote all
Cheers dude, appreciate the thought smile

Gameface

16,565 posts

84 months

Wednesday 1st January 2020
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How old are you Jimi, if you don't mind me asking?

TheJimi

Original Poster:

25,750 posts

250 months

Thursday 2nd January 2020
quotequote all
Not at all - I'm 40.

Have been partially deaf all my life, and lost the useful remainder of what hearing I had in August of last year.

Gameface

16,565 posts

84 months

Thursday 2nd January 2020
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Hereditary? Or did you get tinnitus or something?

TheJimi

Original Poster:

25,750 posts

250 months

Thursday 2nd January 2020
quotequote all
Nah, not hereditary - parent's both have perfect hearing.

I developed hearing issues as a toddler, and from there my hearing slowly deteriorated over time. Tbh, I've always known that I'd eventually lose it, but just not that quickly.

Caddyshack

11,858 posts

213 months

Thursday 2nd January 2020
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I was on holiday and got chatting to an ex RAF tech, he lost his hearing but hid it as long as possible to keep the job, he said he should have got the implant sooner as he lost some of the tone in his voice (he spoke a bit like a deaf person....if that makes sense?) he was really pleased with it.

welshjon81

645 posts

148 months

Thursday 2nd January 2020
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Hi, yes, my son was bilaterally implanted at five years old. He is ten now and doing fantastically well.

It was a very difficult decision for us to make but I am so glad we chose to go through with it.

Being deaf at such a young age, he hardly had any speech at all, now five years on, he has a far better vocabulary than I do. He is a very smart and intelligent little boy who is doing well in a mainstream school. Apart from the visual impact of the devices, you cannot tell that he was deaf.

The NHS were/are brilliant in their support. If something needs replacing or gets damaged, we have a new one in the post in the next day or two. I will never moan about paying tax!

As you can probably tell, I am a huge ambassador of the devices, the technology has allowed my son to lead a normal life, for which I will forever be grateful.

Any questions you have, I would be happy to answer.

Edited by welshjon81 on Thursday 2nd January 11:27

Pastor Of Muppets

3,490 posts

69 months

Saturday 17th September 2022
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Jimi did you ever get the implant?

TheJimi

Original Poster:

25,750 posts

250 months

Monday 19th September 2022
quotequote all
I'd totally forgotten that I started this thread; January 2020 feels like a lifetime ago.

To answer your question, yes, I did get the cochlear implant. Surgery was carried out in August of 2020, with "switch on" being a month later.

I'm incredibly fortunate, because I got a brilliant result with the implant, and it has changed my life massively.

I can even hear my cat grooming herself from the other side of the room biggrin


...and for context, I was stone deaf at the point of starting this thread.

Feel free to ask me anything you like smile

wax lyrical

931 posts

248 months

Tuesday 20th September 2022
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Congratulations and that's fantastic to hear. smile These days most patients would get a similar excellent result - from babies through to the elderly.

May I ask which brand of Cochlear implant you have? I work for Cochlear. smile




TheJimi said:
I'd totally forgotten that I started this thread; January 2020 feels like a lifetime ago.

To answer your question, yes, I did get the cochlear implant. Surgery was carried out in August of 2020, with "switch on" being a month later.

I'm incredibly fortunate, because I got a brilliant result with the implant, and it has changed my life massively.

I can even hear my cat grooming herself from the other side of the room biggrin


...and for context, I was stone deaf at the point of starting this thread.

Feel free to ask me anything you like smile

carinaman

22,086 posts

179 months

Wednesday 21st September 2022
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Congratulations, that's a spirit lifting update.

TwigtheWonderkid

44,700 posts

157 months

Wednesday 21st September 2022
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wax lyrical said:
May I ask which brand of Cochlear implant you have? I work for Cochlear. smile
My wife has the Cochlear Nucleus 7. Do you know Hugh Cooper or Catherine George (maybe you are Hugh Cooper or Catherine George hehe). The whole team at Cochlear were great, as were Dr Khahlil and the team at UCLH.

TheJimi

Original Poster:

25,750 posts

250 months

Wednesday 21st September 2022
quotequote all
wax lyrical said:
Congratulations and that's fantastic to hear. smile These days most patients would get a similar excellent result - from babies through to the elderly.

May I ask which brand of Cochlear implant you have? I work for Cochlear. smile
I'm surprised at your first point. My understanding is that that the less time elapsed between going deaf and implantation (and the more auditory nerve stimulation) the better.

I know two other people who have the same kit as me - N7, and all three of us have fairly different outcomes.

All positive, and life changing, but definitely different results overall.

TwigtheWonderkid

44,700 posts

157 months

Thursday 22nd September 2022
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For those with the N7, what phone do you have? My wife had an iPhone 5S and the app worked great. Just got an iPhone 12 and about 4 times a day the app cannot detect the device. She has to disconnect the battery on the processor and reconnect it and then the app finds the device. A real pain.

wax lyrical

931 posts

248 months

Saturday 24th September 2022
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That's interesting feedback. It's normally a lot more consistent and a 8 or 9 out of 10 result.

Sometimes it depends on the correct 'adjustment' of the processor or different brains take varied lengths of time to learn to interpret the signals from the implant correctly.

TheJimi said:
wax lyrical said:
Congratulations and that's fantastic to hear. smile These days most patients would get a similar excellent result - from babies through to the elderly.

May I ask which brand of Cochlear implant you have? I work for Cochlear. smile
I'm surprised at your first point. My understanding is that that the less time elapsed between going deaf and implantation (and the more auditory nerve stimulation) the better.

I know two other people who have the same kit as me - N7, and all three of us have fairly different outcomes.

All positive, and life changing, but definitely different results overall.

wax lyrical

931 posts

248 months

Saturday 24th September 2022
quotequote all
Sorry - I don't know them personally. smile

TwigtheWonderkid said:
wax lyrical said:
May I ask which brand of Cochlear implant you have? I work for Cochlear. smile
My wife has the Cochlear Nucleus 7. Do you know Hugh Cooper or Catherine George (maybe you are Hugh Cooper or Catherine George hehe). The whole team at Cochlear were great, as were Dr Khahlil and the team at UCLH.