Had a heart attack on Monday.
Discussion
colin_p said:
Stuart,
It seems though, that your ablation was a success.
[edit] Easier said than done, but try not to worry!
Thanks Colin, it was a real success with regards to the SVT. It seems though, that your ablation was a success.
[edit] Easier said than done, but try not to worry!
Edited by colin_p on Friday 9th December 12:27
I am left with the feeling that my heart will not “rev” normally with exercise. Effectively I “run out” of cardio before my heart rate will go up. Like a knackered old petrol engine that cant get beyond 3,000 rpm; my heart is not playing the way it used to.
Just wondered if others had similar experience? It could also be that I need to build up fitness again as well…
Stuart70 said:
colin_p said:
Stuart,
It seems though, that your ablation was a success.
[edit] Easier said than done, but try not to worry!
Thanks Colin, it was a real success with regards to the SVT. It seems though, that your ablation was a success.
[edit] Easier said than done, but try not to worry!
Edited by colin_p on Friday 9th December 12:27
I am left with the feeling that my heart will not “rev” normally with exercise. Effectively I “run out” of cardio before my heart rate will go up. Like a knackered old petrol engine that cant get beyond 3,000 rpm; my heart is not playing the way it used to.
Just wondered if others had similar experience? It could also be that I need to build up fitness again as well…
colin_p said:
Stuart70 said:
colin_p said:
Stuart,
It seems though, that your ablation was a success.
[edit] Easier said than done, but try not to worry!
Thanks Colin, it was a real success with regards to the SVT. It seems though, that your ablation was a success.
[edit] Easier said than done, but try not to worry!
Edited by colin_p on Friday 9th December 12:27
I am left with the feeling that my heart will not “rev” normally with exercise. Effectively I “run out” of cardio before my heart rate will go up. Like a knackered old petrol engine that cant get beyond 3,000 rpm; my heart is not playing the way it used to.
Just wondered if others had similar experience? It could also be that I need to build up fitness again as well…
Long time with no news on my side.
Had my ICD in since 28th November last year and have just got back from my first visit with the consultant overseeing my problem for the last year.
My genetics finally came back and I do have a mutated gene - which we suspected anyway but as of today, I am very glad to say that I do now actually have a name for what caused all these issues.
Hypertrophic Cardiomyopathy.
Apparently I don’t tick every box for it but it’s a less common form of it that I have.
I do still have a troponin leak - they don’t know why and are not looking to treat that in any way.
I am on no other drugs or treatment.
I’ll have 2 Cardiac MRI’s a year going forward but everything looks positive for now.
Being 42 - there’s still potential for the cardiomyopathy to change and cause further issues but they will keep an eye and I’ll cross that bridge when I get to it.
Thanks again to those on this thread who have offered support, advice, PMs of help and general good wishes.
Not the Heart Attack that they thought it was but something that would’ve killed me if they hadn’t done everything in their power to work out what it was.
Massive changes to my lifestyle - lots of things that I can no longer do (and travel insurance is now bloody expensive) but it has been worth it.
Had my ICD in since 28th November last year and have just got back from my first visit with the consultant overseeing my problem for the last year.
My genetics finally came back and I do have a mutated gene - which we suspected anyway but as of today, I am very glad to say that I do now actually have a name for what caused all these issues.
Hypertrophic Cardiomyopathy.
Apparently I don’t tick every box for it but it’s a less common form of it that I have.
I do still have a troponin leak - they don’t know why and are not looking to treat that in any way.
I am on no other drugs or treatment.
I’ll have 2 Cardiac MRI’s a year going forward but everything looks positive for now.
Being 42 - there’s still potential for the cardiomyopathy to change and cause further issues but they will keep an eye and I’ll cross that bridge when I get to it.
Thanks again to those on this thread who have offered support, advice, PMs of help and general good wishes.
Not the Heart Attack that they thought it was but something that would’ve killed me if they hadn’t done everything in their power to work out what it was.
Massive changes to my lifestyle - lots of things that I can no longer do (and travel insurance is now bloody expensive) but it has been worth it.
pidsy said:
Long time with no news on my side.
Had my ICD in since 28th November last year and have just got back from my first visit with the consultant overseeing my problem for the last year.
My genetics finally came back and I do have a mutated gene - which we suspected anyway but as of today, I am very glad to say that I do now actually have a name for what caused all these issues.
Hypertrophic Cardiomyopathy.
Apparently I don’t tick every box for it but it’s a less common form of it that I have.
I do still have a troponin leak - they don’t know why and are not looking to treat that in any way.
I am on no other drugs or treatment.
I’ll have 2 Cardiac MRI’s a year going forward but everything looks positive for now.
Being 42 - there’s still potential for the cardiomyopathy to change and cause further issues but they will keep an eye and I’ll cross that bridge when I get to it.
Thanks again to those on this thread who have offered support, advice, PMs of help and general good wishes.
Not the Heart Attack that they thought it was but something that would’ve killed me if they hadn’t done everything in their power to work out what it was.
Massive changes to my lifestyle - lots of things that I can no longer do (and travel insurance is now bloody expensive) but it has been worth it.
It is good to read a good update.Had my ICD in since 28th November last year and have just got back from my first visit with the consultant overseeing my problem for the last year.
My genetics finally came back and I do have a mutated gene - which we suspected anyway but as of today, I am very glad to say that I do now actually have a name for what caused all these issues.
Hypertrophic Cardiomyopathy.
Apparently I don’t tick every box for it but it’s a less common form of it that I have.
I do still have a troponin leak - they don’t know why and are not looking to treat that in any way.
I am on no other drugs or treatment.
I’ll have 2 Cardiac MRI’s a year going forward but everything looks positive for now.
Being 42 - there’s still potential for the cardiomyopathy to change and cause further issues but they will keep an eye and I’ll cross that bridge when I get to it.
Thanks again to those on this thread who have offered support, advice, PMs of help and general good wishes.
Not the Heart Attack that they thought it was but something that would’ve killed me if they hadn’t done everything in their power to work out what it was.
Massive changes to my lifestyle - lots of things that I can no longer do (and travel insurance is now bloody expensive) but it has been worth it.
Did they get to the bottom of your heart not revving properly? I had this and the 'rate response' function on my ICD was not enabled. Things got better once it was. Do you know if your ICD is pacing you or just listening? Mine paces me taking over the AV node function and works with the sinus node which is ok.
Having a firm diagnosis is also a very good thing to have, as it gives you, and them, something to work with. And not being on any drugs is also a huge bonus.
Hopefully, with the lifestyle changes, you'll be feeling stronger and fitter than before.
Travelling abroad is something I don't do anymore, which is no bother for me as I hate the 'airport' experience and the heat anyway.
Really pleased for you and glad to read the update.
Just a quickie on me; I've had three cardiac arrests this year for which my ICD has shocked me back from, which was nice. I then underwent my third ablation, four catheters, two in each side of the groin and was down there, under a general anaesthetic thankfully, for eight hours, they really went to town! Felt like I'd been hit by a train afterwards. That was in June, fingers crossed, but it can take a few months for the heart to settle down.
Thanks for your reply Colin - you’ve certainly been having a tough year compared to me! Hope you’re properly on the mend now.
My ICD Paces me approx 20% of the time - so it’s definitely involved in keeping me upright.
It’s a Medtronic unit and I had a recall a few weeks back - went in for the new software patch and they changed a lot of the initial parameters on it so I’m feeling better.
The type of myopathy I have causes arrhythmias of varying kinds - mine slowed and stopped my HR, most people go the other way and experience a fast beat.
Interestingly my consultant mentioned today that slightly under 1 in 500 have a form of myopathy in the UK (the majority don’t know and have no symptoms) and one in 200 have an electrical issue with their heart.
That’s a lot of people.
My ICD Paces me approx 20% of the time - so it’s definitely involved in keeping me upright.
It’s a Medtronic unit and I had a recall a few weeks back - went in for the new software patch and they changed a lot of the initial parameters on it so I’m feeling better.
The type of myopathy I have causes arrhythmias of varying kinds - mine slowed and stopped my HR, most people go the other way and experience a fast beat.
Interestingly my consultant mentioned today that slightly under 1 in 500 have a form of myopathy in the UK (the majority don’t know and have no symptoms) and one in 200 have an electrical issue with their heart.
That’s a lot of people.
My partners dad had a heart attack on Sunday morning. In his 60s. Fit as a fiddle, is a farmer and still going strong. Got blue lighted to hospital and had four stents fitted.
Amazingly he was awake and talking by midday. Incredible really.
He's been told he can't drive and has to take it easy. The driving he'll be alright with but he will hate not being able to do stuff!
Amazingly he was awake and talking by midday. Incredible really.
He's been told he can't drive and has to take it easy. The driving he'll be alright with but he will hate not being able to do stuff!
Legacywr said:
Was it a big heart attack? Did he collapse or just feel uncomfortable?
I'm getting it third hand, but it started at around 0630 but he believed it was trapped wind in his chest (I know!). My partner got a call at 0830ish. I saw them blue lighting it to hospital around 0930 where it was still happening when they arrived at hospital around 10ish. Don't believe he collapsed but morphine wasn't touching the pain apparently.
Having had 3 heart attacks , I can reassure you that it is survivable.
First time out it was meds , then a stent , but the problem would not go away , finally 2 years ago I was fitted with an ICM , that was when the problem was finally identified as my heart rate dipping to high 20s , when the bedside unit was interrogated by cardiology I was called in for the immediate installation of electronic ignition ( pacemaker ) This was done 18 months ago and I have never looked back
First time out it was meds , then a stent , but the problem would not go away , finally 2 years ago I was fitted with an ICM , that was when the problem was finally identified as my heart rate dipping to high 20s , when the bedside unit was interrogated by cardiology I was called in for the immediate installation of electronic ignition ( pacemaker ) This was done 18 months ago and I have never looked back
MXRod said:
Having had 3 heart attacks , I can reassure you that it is survivable.
First time out it was meds , then a stent , but the problem would not go away , finally 2 years ago I was fitted with an ICM , that was when the problem was finally identified as my heart rate dipping to high 20s , when the bedside unit was interrogated by cardiology I was called in for the immediate installation of electronic ignition ( pacemaker ) This was done 18 months ago and I have never looked back
Yeah - absolute game changer when it comes to outlook of life. First time out it was meds , then a stent , but the problem would not go away , finally 2 years ago I was fitted with an ICM , that was when the problem was finally identified as my heart rate dipping to high 20s , when the bedside unit was interrogated by cardiology I was called in for the immediate installation of electronic ignition ( pacemaker ) This was done 18 months ago and I have never looked back
MXRod said:
Having had 3 heart attacks , I can reassure you that it is survivable.
First time out it was meds , then a stent , but the problem would not go away , finally 2 years ago I was fitted with an ICM , that was when the problem was finally identified as my heart rate dipping to high 20s , when the bedside unit was interrogated by cardiology I was called in for the immediate installation of electronic ignition ( pacemaker ) This was done 18 months ago and I have never looked back
Electronic ignition...brilliant First time out it was meds , then a stent , but the problem would not go away , finally 2 years ago I was fitted with an ICM , that was when the problem was finally identified as my heart rate dipping to high 20s , when the bedside unit was interrogated by cardiology I was called in for the immediate installation of electronic ignition ( pacemaker ) This was done 18 months ago and I have never looked back
Glad you're all sorted.
randomeddy said:
I thought they were for the pain?
O.M.G the pain.
I eat healthy, don't smoke, don't drink, no exercise but have a very active job. I am overweight. No blood pressure issues. Both parents died of heart problems.
They say it is just one of those things, it can happen to people of all ages.
Are you still aliveO.M.G the pain.
I eat healthy, don't smoke, don't drink, no exercise but have a very active job. I am overweight. No blood pressure issues. Both parents died of heart problems.
They say it is just one of those things, it can happen to people of all ages.
Just spent some time reading through this as i had a MI and stent fitted just over 4 weeks ago (51 in a few weeks)
Encouraging to read some stories and apologies but it's hard not to compare and take some consolation that I've not had it as bad as some and that if I do later that there is so some they can at least try.
It's fascinating what they can do noninvasively and how quickly you can at least feel normal. The recovery stories are also nice to hear as it's a mental game as well as a physical one, I have been walking ok and just increasing the distance and the pace slightly, got my first cardio rehab appointment today (telephone) which I think will help me to know how best to proceed.
Mine was fairly mild nagging chest pain after some significantly more intensive exertion than normal that afternoon, felt a bit bad dialing 999 but never do when it's chest pain, you sense something isn't right to actually do it, just don't delay/second guess/wait and see etc (the paramedics emphasised this too when it came to lingering chest pain)........if I'd managed to fall asleep I'm really not sure I'd be typing this!
Not had any detailed follow up yet (just personal deciphering of the discharge letter comments!), but in hospital after a stent you can drive after 1 week or 4 weeks depending on your hearts pumping %, I made the 1 week which is about the only milestone I had to gauge my severity. I didn't have any beat irregularity either from memory which is I think another bonus.
All the best to recoverees and any future patients.
Encouraging to read some stories and apologies but it's hard not to compare and take some consolation that I've not had it as bad as some and that if I do later that there is so some they can at least try.
It's fascinating what they can do noninvasively and how quickly you can at least feel normal. The recovery stories are also nice to hear as it's a mental game as well as a physical one, I have been walking ok and just increasing the distance and the pace slightly, got my first cardio rehab appointment today (telephone) which I think will help me to know how best to proceed.
Mine was fairly mild nagging chest pain after some significantly more intensive exertion than normal that afternoon, felt a bit bad dialing 999 but never do when it's chest pain, you sense something isn't right to actually do it, just don't delay/second guess/wait and see etc (the paramedics emphasised this too when it came to lingering chest pain)........if I'd managed to fall asleep I'm really not sure I'd be typing this!
Not had any detailed follow up yet (just personal deciphering of the discharge letter comments!), but in hospital after a stent you can drive after 1 week or 4 weeks depending on your hearts pumping %, I made the 1 week which is about the only milestone I had to gauge my severity. I didn't have any beat irregularity either from memory which is I think another bonus.
All the best to recoverees and any future patients.
Stuart70 said:
Nope, no medication post the op. Crisis management and operation and then no ongoing care.
But to be fair, nor did I seek it out. Just a bit nervous about the residual effect.
Thanks for taking the time…
Hi Stuart, I have been having SVT episodes for a few years now and have spent the last year or so speaking to doctors and hospital and am awaiting a cardiac appointment at the end of the month to discuss options. I had been on Bisoprolol which started as a 'pill in the pocket' and 1.25mg, then they put that up to 5mg daily but that was dropping my HR to mid 30's over night so changed that to 3.75mg has had the same effect. Whilst on beta blockers, I would still have SVT episodes almost weekly, they do not sound quite as severe as yours though, or as regular.But to be fair, nor did I seek it out. Just a bit nervous about the residual effect.
Thanks for taking the time…
Did you notice any triggers to your episodes? Mine generally happen when resting or if I cough whilst laying down.
I have stopped taking the beta blockers as I honestly think that the episodes occur more regularly whilst taking them. They certainly do not help the situation so I don't see the point in continuing taking them.
I hope you do not have any negative effects of the Ablation. I know a couple of people that have had it done, both took two attempts to get it right but to the best of my knowledge, they have had no ill effects.
Scootersp said:
Just spent some time reading through this as i had a MI and stent fitted just over 4 weeks ago (51 in a few weeks)
Encouraging to read some stories and apologies but it's hard not to compare and take some consolation that I've not had it as bad as some and that if I do later that there is so some they can at least try.
It's fascinating what they can do noninvasively and how quickly you can at least feel normal. The recovery stories are also nice to hear as it's a mental game as well as a physical one, I have been walking ok and just increasing the distance and the pace slightly, got my first cardio rehab appointment today (telephone) which I think will help me to know how best to proceed.
Mine was fairly mild nagging chest pain after some significantly more intensive exertion than normal that afternoon, felt a bit bad dialing 999 but never do when it's chest pain, you sense something isn't right to actually do it, just don't delay/second guess/wait and see etc (the paramedics emphasised this too when it came to lingering chest pain)........if I'd managed to fall asleep I'm really not sure I'd be typing this!
Not had any detailed follow up yet (just personal deciphering of the discharge letter comments!), but in hospital after a stent you can drive after 1 week or 4 weeks depending on your hearts pumping %, I made the 1 week which is about the only milestone I had to gauge my severity. I didn't have any beat irregularity either from memory which is I think another bonus.
All the best to recoverees and any future patients.
Glad to hear you are doing OK. Encouraging to read some stories and apologies but it's hard not to compare and take some consolation that I've not had it as bad as some and that if I do later that there is so some they can at least try.
It's fascinating what they can do noninvasively and how quickly you can at least feel normal. The recovery stories are also nice to hear as it's a mental game as well as a physical one, I have been walking ok and just increasing the distance and the pace slightly, got my first cardio rehab appointment today (telephone) which I think will help me to know how best to proceed.
Mine was fairly mild nagging chest pain after some significantly more intensive exertion than normal that afternoon, felt a bit bad dialing 999 but never do when it's chest pain, you sense something isn't right to actually do it, just don't delay/second guess/wait and see etc (the paramedics emphasised this too when it came to lingering chest pain)........if I'd managed to fall asleep I'm really not sure I'd be typing this!
Not had any detailed follow up yet (just personal deciphering of the discharge letter comments!), but in hospital after a stent you can drive after 1 week or 4 weeks depending on your hearts pumping %, I made the 1 week which is about the only milestone I had to gauge my severity. I didn't have any beat irregularity either from memory which is I think another bonus.
All the best to recoverees and any future patients.
Does your local trust offer any kind of cardiac rehab? Mine did, and I found it well worthwhile. Mainly because I wanted to get back into exercsing but I was rather nervous as to how far I could push things. They took things very steady and I can now comfortably run/cycle at 150bpm with no issues (7yrs post-event for me). Just off to the gym at lunchtime, a necessary evil.
curtisl said:
Stuart70 said:
Nope, no medication post the op. Crisis management and operation and then no ongoing care.
But to be fair, nor did I seek it out. Just a bit nervous about the residual effect.
Thanks for taking the time…
Hi Stuart, I have been having SVT episodes for a few years now and have spent the last year or so speaking to doctors and hospital and am awaiting a cardiac appointment at the end of the month to discuss options. I had been on Bisoprolol which started as a 'pill in the pocket' and 1.25mg, then they put that up to 5mg daily but that was dropping my HR to mid 30's over night so changed that to 3.75mg has had the same effect. Whilst on beta blockers, I would still have SVT episodes almost weekly, they do not sound quite as severe as yours though, or as regular.But to be fair, nor did I seek it out. Just a bit nervous about the residual effect.
Thanks for taking the time…
Did you notice any triggers to your episodes? Mine generally happen when resting or if I cough whilst laying down.
I have stopped taking the beta blockers as I honestly think that the episodes occur more regularly whilst taking them. They certainly do not help the situation so I don't see the point in continuing taking them.
I hope you do not have any negative effects of the Ablation. I know a couple of people that have had it done, both took two attempts to get it right but to the best of my knowledge, they have had no ill effects.
I hope that you can get it under control. I found it incredibly tiring if nothing else.
I was under a lot of stress at the time with work, my mother had just died; so I think the condition was brought on by pressure, but I couldn’t work out the exact trigger for individual episodes. Sometimes breathing in deeply and holding my breath and releasing very slowly could control it, but not often.
Since the op, it flared up again and I am now on a cocktail of beta blockers, diabetes and blood thinners. It is under control at present, but I am still a fat b
d who doesn’t take any exercise, drinks too much and I have just taken on a high stress role. I like my life a lot, but you wouldn’t know it from my behaviour. Typing this has given me pause for thought. Thank you!
Vasco said:
Hmmm
.....fat bd...
.....no exercise...
.....heavy drinker...
.....stressful job....
What could possibly go wrong....!!
It always catches up with you in the end. You think you are getting away with it, that everything is OK and then some nondescript Thursday afternoon when you least expect it something happens and it escalates and goes out of your control......fat b
d........no exercise...
.....heavy drinker...
.....stressful job....
What could possibly go wrong....!!
That is the point you start to regret the last twenty years of life decisions with regards to your health and fitness.
Gassing Station | Health Matters | Top of Page | What's New | My Stuff