Had a heart attack on Monday.

Had a heart attack on Monday.

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Tin Hat

1,381 posts

212 months

Tuesday 1st November 2022
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pidsy said:
Thought I’d give an update.

After coming out - I had a seven day tape in august and a follow up cardiac MRI in September.

Had the results appointment with a consultant yesterday. Turns out things aren’t going very well.
My tape showed that overnight (on 3 different nights in the week) my heart stops beating - the longest period being just under 5 seconds.

He believes that I have another genetic fault - a type of cardiomyopathy. In his words “we need to keep a very close eye and get this sorted”.

Got a call after lunch today and they’d had a case meeting about me this morning and there is a renowned specialist on their team who is very eager to meet me so I’m back at the cardiac unit tomorrow for a meeting to with them to discuss what they plan to do.

Last night it was briefly mentioned that I could end up with a pace maker with built in Defibrillator- I’m guessing he was right and that’s the discussion we’ll be having tomorrow.

It’s all happened so quickly - nothing for months and now mayhem in the past 24hrs.

If I’m honest, I’m absolutely terrified.
I’m not scared of having the kit fitted, I’m scared of the unknown. It’s a really horrible feeling as a (normally) very fit and healthy 41 year old.
I guess I’ll know what’s going to happen this time tomorrow.
Good luck Sir, may the force be with you.

PurpleTurtle

7,165 posts

147 months

Tuesday 1st November 2022
quotequote all
pidsy said:
Thought I’d give an update.

After coming out - I had a seven day tape in august and a follow up cardiac MRI in September.

Had the results appointment with a consultant yesterday. Turns out things aren’t going very well.
My tape showed that overnight (on 3 different nights in the week) my heart stops beating - the longest period being just under 5 seconds.

He believes that I have another genetic fault - a type of cardiomyopathy. In his words “we need to keep a very close eye and get this sorted”.

Got a call after lunch today and they’d had a case meeting about me this morning and there is a renowned specialist on their team who is very eager to meet me so I’m back at the cardiac unit tomorrow for a meeting to with them to discuss what they plan to do.

Last night it was briefly mentioned that I could end up with a pace maker with built in Defibrillator- I’m guessing he was right and that’s the discussion we’ll be having tomorrow.

It’s all happened so quickly - nothing for months and now mayhem in the past 24hrs.

If I’m honest, I’m absolutely terrified.
I’m not scared of having the kit fitted, I’m scared of the unknown. It’s a really horrible feeling as a (normally) very fit and healthy 41 year old.
I guess I’ll know what’s going to happen this time tomorrow.
Blimey fella, that sounds scary but I'm sure you're in very capable hands.

If it helps, a colleague of mine had these exact same symptoms and was similarly diagnosed. He had a pacemaker fitted and life is very much back to normal for him.

This being a motoring forum, what have they said about driving? My colleague had to stop driving for a couple of months (hence me giving him a lift a few days a week and discussing it at length) but is now right as rain and back behind the wheel of his new 5 Series!

Good luck for tomorrow.

V1nce Fox

5,508 posts

71 months

Tuesday 1st November 2022
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Nothing more to add than good luck and keep us all posted.

Piginapoke

4,854 posts

188 months

Tuesday 1st November 2022
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Yep, good luck. The worst is not knowing, once you’ve had a chat with the specialist and know what you’re facing you’ll feel better I hope.

pidsy

8,075 posts

160 months

Tuesday 1st November 2022
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Thanks all.

I’ve had a bit of a cry and I feel a bit more clear headed. It’s out of my hands - they can do whatever they need to to get this under control.

In terms of driving, I think the 2 month rule comes into play which is st but I can cope with that.

595Heaven

2,441 posts

81 months

Tuesday 1st November 2022
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Thanks for the update. Sorry it wasn’t all positive though…

Wishing you all the best

r3g

3,520 posts

27 months

Tuesday 1st November 2022
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pidsy said:
Thanks all.

I’ve had a bit of a cry and I feel a bit more clear headed. It’s out of my hands - they can do whatever they need to to get this under control.

In terms of driving, I think the 2 month rule comes into play which is st but I can cope with that.
Covid? Are you up to date with your jabs?

pidsy

8,075 posts

160 months

Tuesday 1st November 2022
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I am.

Pit Pony

8,969 posts

124 months

Tuesday 1st November 2022
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Just come to this 2 plus years late. Only read the first post.

My heart attack aged 53 was on my son's birthday in June 2020.

I had got up and had some cereals, and felt my throat was very sore. I made myself some hot honey and lemon, and drank half, and decided I'd go back to bed. I got back into bed and told my wife, I felt ill, and to budge up. She put the light on and immediately phoned 111. Within 5 minutes an.ambulance was out side.
Tablet under the tongue, definitely helped. Went to Southport a&e. 2 days later transfered to LH&CH at broad green for a stent.

classicfred

385 posts

80 months

Tuesday 1st November 2022
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Hi,

I had a deffribillator with pacemaker fitted last Thursday after suffering ventricular tachycardia for the second time in 2 months. Operation wasn't so bad ( no worse than my dentist ! ) and is a bit painful around the wound and there's some mental issues wondering/waiting for it to give me the big shock - which of course may never happen.
Venticular tachycardia is extremely frightening and the first time they thought i had had a heart attack ( which I have had previously and is the reason ventricular tachycardia has manifested now ) as I had partially recovered when the ambulance arrived so was sent home after 2days in hospital. 2nd time happened 2 miles down an isolated footpath and i was 2 hours laying there in and out of consciousness in the dark. Luckily, I managed to get through to 999 3 times after passing out while on the phone each time and after 2hours the ambulance crew got to me ( by walking 2 miles ) and got some equipment onto me which showed heart beat ( over 280 for a total of 3 hours) blood pressure ( 15/10) etc so when they eventually got me back to the hospital they saw it was not a heart attack but ventricular tachycardia which was crucial. If that hadn't been seen/recorded, they would have said it was a heart attack again according to the specialists. Cardio surgeons said they don't know how I survived ( I shouldn't have ) but I did !
I am now unable to drive for at least 6 months ( more/permanently if the device goes off ).

So, despite what you may think , it is good that you are getting the relevant tests/seen by experts and there is no reason why after the relevant treatment you can have a decent/pretty normal life - apart from maybe driving.
With the defribulltor, you are also given a device to keep nearby which sends signals/data back to the hospital at least once a day so you can be monitored. I think mine is set to give me the ' big one ' if my pulse hits 222 bmp. It also keeps my pulse above 60 bpm so i can be treated more aggressively with drugs.
Not sure if any of the above helps and is early days yet but it shows the right diagnosis is crucial.
When I first saw the surgeon, he said ' you need an electrician not a heart surgeon ' smile.

pidsy

8,075 posts

160 months

Tuesday 1st November 2022
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Classicfred - thank you for your post. I’m obviously at the other end of the spectrum - my heart is lazy!

Makes me feel much better about the prospects.

There was a guy opposite me when I was in earlier in the year who had tachycardia- it was awful to watch him going through that. I’ve never seen a heart monitor with lines on it like that.

anonymous-user

57 months

Tuesday 1st November 2022
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Road2Ruin said:
MOBB said:
Aa bloke approaching 50, with no specific symptoms or anything like that, is it possible to have some sort of MOT done to see if there are any potential problems before they strike, or is is a case of wait til something happens?
Yes. Pay for an angiogram privately. Not painless, but quick and relatively simple.

There are other tests, but as most heart attacks are blocked arteries then that's the best place to start.
You can have an exercise treadmill test or a CT coronary angiogram. These are both non invasive, No need for an invasive angiogram (which involves a real although very small risk) for screening.

classicfred

385 posts

80 months

Tuesday 1st November 2022
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Hi,

From what they have said to me, the defribillator also acts as a pacemaker which can also be used to stop your heart going too slow as well as too fast.

A bit of info from British Heart Foundation below ;

https://www.bhf.org.uk/informationsupport/treatmen...
https://www.bhf.org.uk/informationsupport/publicat...

Yes, Ventricular Tachycardia is not recommended - believe me ! Especially down a remote path in the dark alone - - I honestly thought I was dead and the longer I was there ( over 2 hours laid on on track not being able to breathe ) the chance of survival was disappearing.....One minute you are ok, 30 seconds later you are very much not and the feeling of helplessness .... When I passed out, each time I also dropped my phone and how I managed to find it again in the dark I'll never know..... I was also lucky to get a signal where I was.

When the specialist in A&E saw my trace, he called over his colleague and said ;

' look at this, that's what kills you ! Over 280 bmp for approx 3hours with very little blood going around the body '

Another thing to remember is the importance of carrying a mobile (checking it is fully charged) with you and even though mine is not a smart phone, it basically helped to save my life. I will be investing in a new smart phone asap now having before always thought they weren't worth the money ! If my phone had been able to download certain apps ( three words ? ) , I may have been found easier also.

Can't thank the paramedics enough either for not giving up looking for me and then calling colleagues to help stretcher me back to the ambulance as I was incapable of walking/moving - all heroes !!

Another important thing to remember is that you are getting/going to get treatment to help/correct your condition which puts you in a much better situation than when you were undiagnosed. They said to me a least you have something now like a paramedic inside you which can react to try to protect you/save your life which before I didn't have. I know it sounds crap at the time but being diagnosed and treated is much better/gives you a much better chance than going around undiagnosed - hope I've worded that correctly.

Edited by classicfred on Tuesday 1st November 22:55

classicfred

385 posts

80 months

Tuesday 1st November 2022
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apologies for another post -

Forgot to mention I also wear a medical alert bracelet with name/DOB/ allergies etc on it. I have now ordered another one to state that I have the defribullator fitted and a few of the drugs I am on.
It certainly helped when the paramedics arrived as I could just point them to my bracelet as I was unable to speak at the time.
This is the firm I used but there are also plenty of others ;

https://theidbandco.com/medical-bracelets/

MXRod

2,762 posts

150 months

Wednesday 2nd November 2022
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I have contributed to this thread a couple of times , each time I have tried to put a positive (hopefully ) view of outcomes ,
Quick sum up , I have had various heart problems for a number of years , culminating in 3 (yes 3 ) MI over a period of 10 years or so .Investigations got it down to , ischemic heart disease , AF and left bundle branch block ? .
Even with walking 24 hr ECG one thing that was not picked up in all those tests was a sudden slowing down of my heart rate , it was only after I was fitted with an ILR( this device relays certain heart events directly via a base station to the monitoring lab at my local hospital) and it being triggered with this slowing down during a dog walk where I all but passed out .
I was called into A&E , I bypassed the normal triage and went straight to cardiology , given an ECG and listed for immediate installation of a pacemaker which was done the next morning , and since then I have felt 100% better ( covid excepted ) .So what I would like to impart to those having heart problems , It is not all doom and gloom , the problems are survivable,
I am 76 and still going strong

McGee_22

6,834 posts

182 months

Wednesday 2nd November 2022
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I am a 'close but no cigar yet' man. No medical history up to the day and no regular medication.

Jan 2021 I was sat on the sofa and started feeling cramping chest pain that very quickly extended into the neck - I tried to walk it off but could literally go only a few feet because of the pain and extreme shortness of breath. It was mid-Covid and being an ex-Paramedic I tried to talk myself out of what I hoped it wasn't as A&E would be stuffed and the Ambulances all busy, but all the same I took two 300mg Aspirins and after 10 minutes the pain subsided.

I got through the night and called the GP surgery the next morning and they called me down for tests - blood test and ECG all normal but Cholesterol slightly high and BP was sky high (185/105) and GP concerned enough about my prescription to instantly put me on Amlodipine (BP), Aspirin (Heart) and Atorvastatin (Cholesterol).

Sent off to the local hospital a day or so later for an ECG and stress test they discovered I still have too high a BP despite the meds (white coat BP) so cannot be allowed to do the stress test so then off to to a private clinic for an angiogram. Angiogram revealed a 50% blockage in the delightfully nicknamed LAD, Left Anterior Descending Artery, aka, 'The Widowmaker'. The Consultant Cardiologist reckoned my 'episode' was the closest of close shaves as the response to Aspirin cleared the very typical pain I had described. I have to have a yearly angiogram so they can monitor the blockage.

Still on the meds above as well as (as yet unused) GTN in my pocket and further issues have revealed the strange noises I hear on the stairs are not the wood creaking but the last remnants of cartilage in my knees (Grade 4 so the worst they can be before an Op is needed) so fairly regular painkillers for that and the also fairly regular phenergan to counteract the side effects of all the other meds waking me up midway through the nigh.

A near miss, a close shave, a wake up call - whatever it was it has made me fall back in love with life a little and appreciate the tiny elements of every day that make me smile and that I had perhaps taken for granted after 50-odd years.

'Not Dead Yet!' is my current favourite toast and was a favourite expression of a long lived and belligerent old Irish Grandmother of mine.

extraT

1,793 posts

153 months

Wednesday 2nd November 2022
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My mum has a similar “set-up” biggrin

If it helps, we tell her she can help jumpstart a car if it’s needed!

In all seriousness, good luck and be comforted that the device will do its job, and support your regular plumbing smile

NDA

21,787 posts

228 months

Wednesday 2nd November 2022
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pidsy said:
He believes that I have another genetic fault - a type of cardiomyopathy. In his words “we need to keep a very close eye and get this sorted”.

Got a call after lunch today and they’d had a case meeting about me this morning and there is a renowned specialist on their team who is very eager to meet me so I’m back at the cardiac unit tomorrow for a meeting to with them to discuss what they plan to do.

Last night it was briefly mentioned that I could end up with a pace maker with built in Defibrillator- I’m guessing he was right and that’s the discussion we’ll be having tomorrow.
Interesting... I have a cardiomyopathy .. 3 stents, a bypass and an ICD - the full Monty! The ICD is there to 'repair' a blocked bundle branch as well as pacing - my ejection fraction wasn't looking at all good.

Feel free to PM me if there's stuff you need to be reassured about.

geeks

9,278 posts

142 months

Wednesday 2nd November 2022
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My best mate rung me a couple of months ago "Don't panic but I have just been discharged from A&E......" He had gone to work feeling a bit under the weather, went to get his stuff for the day sorted (he is a lorry driver) and all of a sudden his Apple Watch starts going ape st at him, looks at it and he has an urgent health alert for Atrial Fibrillation. Work take him tot he local walk in centre (being over the road made more sense than an ambulance I guess) and they call him an ambulance while hooking him up to monitors and giving him a couple of tablets. Long story short he is assessed and deemed very not well but not in immediate danger, he is signed off work and sent home, he got slowly a bit worse, unable to go up stairs without being out of breath, not able to help with the shopping etc. Doctors keep him on meds and close observation from home, he is now setup to be "rebooted" on the 7th, he has played the whole thing cool and calm but I know he is terrified I can see it in his eyes, he has an 8 year old daughter and a family to support. I am scared for him as well, not really sure what I would do without him to get into trouble with, he has covered the basics of what he wants to happen if anything goes wrong we are hoping for the best but prepping for the worst. Doctors have said he will be in and out quite quickly and its routine so he really does have a very good chance of a full recovery.

Leads me onto this: His consultant has said he was lucky to be wearing some smart tech, the thing with Atrial Fibrillation is apparently alot of people put it down to being a bit under the weather and try to carry on before the next big event that kills them a few days or so later. I work in the tech industry and spend alot of time at Apple events etc and always thought the stories of them saving lives with the Apple Watch was a bit of good marketing from one or two edge cases but to know someone who was literally saved by one has changed my view on it quite a bit.

You guys who suffer and are or not in danger, look after yourselves and if you can maybe invest in something similar, it could save your life, pretty much all smart tech like this can be setup with cardiac alerts, fall alerts, and automatic contacting of ICE contacts in the event you don't respond to said tech.

pidsy

8,075 posts

160 months

Wednesday 2nd November 2022
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I’m getting the full package.

Defibrillator and pacemaker. All in the next 10 days. My new consultant was really nice and the cardiac physiology team that I had a separate meeting with afterwards were also lovely. I feel much better about it all now I’ve had it all explained to me in depth. I got to see the unit and leads that will be implanted, had all my questions answered and am now feeling quite positive about it all.

In terms of driving, it’ll be 4 weeks I can’t drive for which isn’t too bad.

I feel like a huge weight has been lifted. Just got to wait for a call in the next couple of days.