Kyle's Goal - Please read
Discussion
Kyle's Goal
Ladies & Gents, would you please take 2 minutes to read the website, and sign the petition if you wish.
*copied and pasted from the website*
Kyle was a typically fit, healthy & intelligent twelve year old boy with a promising football career in front of him. On 14th November 2009 he walked into the accident and emergency unit with a severe headache. What was unknown at the time was that he was suffering a massive brain haemorrhage caused by a rare condition called Arteriovenous Malformations (AVM).
Kyle has so far had two major and two minor brain surgeries, along with a tracheostomy at the University Hospital of Wales (UHW). Thanks to his love for life and the excellent medical teams at the hospital, Kyle has defied all the odds and is making excellent progress every day. He is however, now in the unenviable position of having to relearn all cognitive and motor skills, e.g. learning to walk and talk again, that would have previously come naturally to him. We cannot underestimate the huge challenge that Kyle still has to face.
It has now come the time to begin his rehabilitation. Kyle’s family thought this would take place at either the new Children’s Hospital for Wales at UHW or at the long established rehabilitation centre at Rookwood Hospital.
Unbelievably, Rookwood only accepts patients of 16 years or older and there is no rehabilitation facility at UHW or anywhere else in Wales and the South West.
The nearest suitable facility is in Tadworth, Surrey (www.thechildrenstrust.org.uk), but this specialist facility is limited to 49 spaces. It is also 160 miles (3 hours) away from Kyle’s friends and family.
Although Kyle’s condition does not always result in such a catastrophic outcome, it can remain undetected for years and even life. The type of rehabilitation needed however is exactly the same rehabilitation any child could need if they are knocked off their bike, involved in a car-crash, fallen off any playground equipment or any other possible head trauma that many children are prone to suffer.
Your support is urgently needed to improve the medical care offered to those too young to defend their own rights.
Cheers all. Ben
Ladies & Gents, would you please take 2 minutes to read the website, and sign the petition if you wish.
*copied and pasted from the website*
Kyle was a typically fit, healthy & intelligent twelve year old boy with a promising football career in front of him. On 14th November 2009 he walked into the accident and emergency unit with a severe headache. What was unknown at the time was that he was suffering a massive brain haemorrhage caused by a rare condition called Arteriovenous Malformations (AVM).
Kyle has so far had two major and two minor brain surgeries, along with a tracheostomy at the University Hospital of Wales (UHW). Thanks to his love for life and the excellent medical teams at the hospital, Kyle has defied all the odds and is making excellent progress every day. He is however, now in the unenviable position of having to relearn all cognitive and motor skills, e.g. learning to walk and talk again, that would have previously come naturally to him. We cannot underestimate the huge challenge that Kyle still has to face.
It has now come the time to begin his rehabilitation. Kyle’s family thought this would take place at either the new Children’s Hospital for Wales at UHW or at the long established rehabilitation centre at Rookwood Hospital.
Unbelievably, Rookwood only accepts patients of 16 years or older and there is no rehabilitation facility at UHW or anywhere else in Wales and the South West.
The nearest suitable facility is in Tadworth, Surrey (www.thechildrenstrust.org.uk), but this specialist facility is limited to 49 spaces. It is also 160 miles (3 hours) away from Kyle’s friends and family.
Although Kyle’s condition does not always result in such a catastrophic outcome, it can remain undetected for years and even life. The type of rehabilitation needed however is exactly the same rehabilitation any child could need if they are knocked off their bike, involved in a car-crash, fallen off any playground equipment or any other possible head trauma that many children are prone to suffer.
Your support is urgently needed to improve the medical care offered to those too young to defend their own rights.
Cheers all. Ben
Edited by sorrento205 on Wednesday 13th January 21:50
My mother has an inoperable AVM at the base of the Skull and since having the first episode over five years ago. Due to the nature of it she can't drive or work anymore as she has experience seizures. I am signing this for sure. I hope the little fellow goes on to have a great life and receives the help he needs.
Nice one fella's
I know Kyle and family personally and I can tell you this is appreciated.
I'll be nipping into see him on the weekend, and I'll let them now about this thread if they don't already know.
He's seems too be getting better each week I see him, not bad progress considering we were told that he was goner 7 weeks ago.
@ sorrento, tell Paul(lazy assed)Stacey too get on with some work for a change lololol
I know Kyle and family personally and I can tell you this is appreciated.
I'll be nipping into see him on the weekend, and I'll let them now about this thread if they don't already know.
He's seems too be getting better each week I see him, not bad progress considering we were told that he was goner 7 weeks ago.
@ sorrento, tell Paul(lazy assed)Stacey too get on with some work for a change lololol
fatty5000 said:
Nice one fella's
I know Kyle and family personally and I can tell you this is appreciated.
I'll be nipping into see him on the weekend, and I'll let them now about this thread if they don't already know.
He's seems too be getting better each week I see him, not bad progress considering we were told that he was goner 7 weeks ago.
@ sorrento, tell Paul(lazy assed)Stacey too get on with some work for a change lololol
Hiya mate. Paul had a phonecall thismorning off Kyle's mum i believe, mentioned that this thread has done wonders for the ePetition, and also its place on the google search. So its nice to know the cause is gaining momentum.I know Kyle and family personally and I can tell you this is appreciated.
I'll be nipping into see him on the weekend, and I'll let them now about this thread if they don't already know.
He's seems too be getting better each week I see him, not bad progress considering we were told that he was goner 7 weeks ago.
@ sorrento, tell Paul(lazy assed)Stacey too get on with some work for a change lololol
CraigW said:
people that know him, does he like nice cars etc? would he be able to come to vmax or too much for him ?
If David(fatty5000) doesn't reply by monday then i will mention it to my colleague(Paul) and maybe there can be something arranged for Kyle. CraigW said:
people that know him, does he like nice cars etc? would he be able to come to vmax or too much for him ?
He is fond of a nice motor yes, but he's still under the care UHW so he can't really leave there yet tbh. Maybe when he is little better in the future though.He is making progress slowly, I saw him on the weekend and there is definate progress.
Thanks for all your help/signatures.
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