Kyle's Goal - Please read

Kyle's Goal - Please read

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Discussion

sorrento205

Original Poster:

2,875 posts

242 months

Wednesday 13th January 2010
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Kyle's Goal

Ladies & Gents, would you please take 2 minutes to read the website, and sign the petition if you wish.

*copied and pasted from the website*

Kyle was a typically fit, healthy & intelligent twelve year old boy with a promising football career in front of him. On 14th November 2009 he walked into the accident and emergency unit with a severe headache. What was unknown at the time was that he was suffering a massive brain haemorrhage caused by a rare condition called Arteriovenous Malformations (AVM).

Kyle has so far had two major and two minor brain surgeries, along with a tracheostomy at the University Hospital of Wales (UHW). Thanks to his love for life and the excellent medical teams at the hospital, Kyle has defied all the odds and is making excellent progress every day. He is however, now in the unenviable position of having to relearn all cognitive and motor skills, e.g. learning to walk and talk again, that would have previously come naturally to him. We cannot underestimate the huge challenge that Kyle still has to face.

It has now come the time to begin his rehabilitation. Kyle’s family thought this would take place at either the new Children’s Hospital for Wales at UHW or at the long established rehabilitation centre at Rookwood Hospital.

Unbelievably, Rookwood only accepts patients of 16 years or older and there is no rehabilitation facility at UHW or anywhere else in Wales and the South West.

The nearest suitable facility is in Tadworth, Surrey (www.thechildrenstrust.org.uk), but this specialist facility is limited to 49 spaces. It is also 160 miles (3 hours) away from Kyle’s friends and family.

Although Kyle’s condition does not always result in such a catastrophic outcome, it can remain undetected for years and even life. The type of rehabilitation needed however is exactly the same rehabilitation any child could need if they are knocked off their bike, involved in a car-crash, fallen off any playground equipment or any other possible head trauma that many children are prone to suffer.

Your support is urgently needed to improve the medical care offered to those too young to defend their own rights.


Cheers all. Ben

Edited by sorrento205 on Wednesday 13th January 21:50

pwd95

8,397 posts

244 months

Wednesday 13th January 2010
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That link doesn't work for me Ben.

odyssey2200

18,650 posts

215 months

Wednesday 13th January 2010
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Allblackdup

3,312 posts

214 months

Wednesday 13th January 2010
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Signed

Callyuk

715 posts

188 months

Wednesday 13th January 2010
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Also signed

pwd95

8,397 posts

244 months

Wednesday 13th January 2010
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thumbup

AR

861 posts

230 months

Wednesday 13th January 2010
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My mother has an inoperable AVM at the base of the Skull and since having the first episode over five years ago. Due to the nature of it she can't drive or work anymore as she has experience seizures. I am signing this for sure. I hope the little fellow goes on to have a great life and receives the help he needs.

sorrento205

Original Poster:

2,875 posts

242 months

Wednesday 13th January 2010
quotequote all
Cheers guys. Link fixed. A colleague is a close friend of the family and i know it will mean a lot to them. Here's hoping Kyle's situation improves, and the need for a rehabilitation facility in the south west/south wales is highlighted to those who need to know. shout

5TUE

740 posts

178 months

Wednesday 13th January 2010
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Just makes you think. I have two sprogs under three and you just never know. Signed.

Luckey

345 posts

216 months

Thursday 14th January 2010
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thumbup

Family Guy

802 posts

214 months

Thursday 14th January 2010
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My daughter lost her best friend to a brain tumour at the age of 6. Makes you realise just how precious young life is.

All signed.

taffyracer

2,093 posts

249 months

Thursday 14th January 2010
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jeez.....signed

sean19

672 posts

206 months

Friday 15th January 2010
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signed

effkay

737 posts

195 months

Friday 15th January 2010
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...and me.

fatty5000

58 posts

196 months

Friday 15th January 2010
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Nice one fella's


I know Kyle and family personally and I can tell you this is appreciated.


I'll be nipping into see him on the weekend, and I'll let them now about this thread if they don't already know.


He's seems too be getting better each week I see him, not bad progress considering we were told that he was goner 7 weeks ago.



@ sorrento, tell Paul(lazy assed)Stacey too get on with some work for a change lololol

CraigW

12,248 posts

288 months

Friday 15th January 2010
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people that know him, does he like nice cars etc? would he be able to come to vmax or too much for him ?

sorrento205

Original Poster:

2,875 posts

242 months

Friday 15th January 2010
quotequote all
fatty5000 said:
Nice one fella's

I know Kyle and family personally and I can tell you this is appreciated.

I'll be nipping into see him on the weekend, and I'll let them now about this thread if they don't already know.

He's seems too be getting better each week I see him, not bad progress considering we were told that he was goner 7 weeks ago.

@ sorrento, tell Paul(lazy assed)Stacey too get on with some work for a change lololol
Hiya mate. Paul had a phonecall thismorning off Kyle's mum i believe, mentioned that this thread has done wonders for the ePetition, and also its place on the google search. So its nice to know the cause is gaining momentum.

CraigW said:
people that know him, does he like nice cars etc? would he be able to come to vmax or too much for him ?
If David(fatty5000) doesn't reply by monday then i will mention it to my colleague(Paul) and maybe there can be something arranged for Kyle. thumbup

S2

700 posts

223 months

Saturday 16th January 2010
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Signed and I've downloaded the poster and put it up in our local community centre.
Let's hope he makes a full recovery.

DAVE-W

544 posts

217 months

Saturday 16th January 2010
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Signed. Wish the little guy all the best!

fatty5000

58 posts

196 months

Monday 25th January 2010
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CraigW said:
people that know him, does he like nice cars etc? would he be able to come to vmax or too much for him ?
He is fond of a nice motor yes, but he's still under the care UHW so he can't really leave there yet tbh. Maybe when he is little better in the future though.


He is making progress slowly, I saw him on the weekend and there is definate progress.


Thanks for all your help/signatures.